Co-Survivor Award: My Mom and My MAN

Way back when I was first diagnosed and wrote a profile for myself for Bumpyboobs and FacingCancer.ca, I identified myself as a survivor. Forget dictionary definitions, I defined a survivor as someone getting up every day, facing what needed to be done, learning how to thrive through uncertain realities, and living life on their terms.

My life, my definition.

So when FacingCancer.ca recently announced their Co-Survivor Award, it made me really happy to see their definition of survivorship:

We believe survivorship begins at the time of diagnosis.

And it made me even happier to see that they’ve decided to honour those who have supported us, honouring the support they’ve given.

And surrounding every cancer survivor, there are people who care: we call them Co-Survivors. Whether it’s a friend, a family member, a medical professional or an online supporter, use the form below to tell us who has made your cancer experience a little better with their selfless support.

There have been many people in my life who have helped. From friends in England, family in Canada, letters & emails from my friends during treatments, support during my crowdfunding, and the awesomeness and insight of those who get it online. But for the Co-Survivor award, if I could nominate someone (and I can’t because I work for FacingCancer.ca), it would be two someones: My husband and my mother.

Zsolt is Zsolt. You know him via this blog. He is softness and love and unconditional support. We’ve been through so much together and still we dance in the middle of the day. There’s so much to say, I really cannot begin to capture it all.

My mom, well, she’s my guide, point of reference and my friend. When I hear one thing regarding healthcare, I’ll take it to her for her opinion. And I’ll never forget how she left Canada and my dad for over a month (to sleep in our small one bedroom apartment on an air mattress in England) to help me recovering from the mastectomy – and then to help Zsolt and I weather that first terrible round of chemotherapy.

So here is the question: Who is your co-survivor, or co-thrivor, or co-awesomnesser?

award

If you live in Canada and can think of someone you’d nominate as co-survivor – then I invite you to pitch in your story over at FacingCancer.ca. Ten from the many will be chosen, and then we’ll agonize over them to land upon the first Co-Survivor recipient (but the ten will also receive goodies, too). Can you think of someone? Nominate here.

If you don’t live in Canada, and I know many don’t, but still want to share who has supported you , that’s what the comments are for ; ) People do read the comments, and they do pull inspiration from them – even folks supporting others, and needing to hear the positive impact their actions may have. Or even better – write about it on your own blog, and then link it back here. 😉

And you know what? Even if you haven’t had cancer (I hope), you may still have a co-survivor in your life, or co-supporter. I love stories about love, and about generosity, so I welcome you to leave your own reflections.

Now, that is all I have to say about that.

Except this P.S.!

P.S. I wasn’t asked or prompted to write this post for the award. I just like the idea. Everyone who does something kind for another person deserves to know their impact. This is just one really great way of saying thanks.

 

 

More than this “battle”

It’s so easy to say something with the best of intentions, and having it come out all wrong. I get that. I’ve done it myself actually more than once. But this whole “lost their battle” thing irks me so much, that I feel compelled to write about it in my post. Just gotta do it. So I’ll say this now while the pain of loss isn’t radiating, and it hopefully it won’t be seen as an attack on those who mean well, but rather as a constructive thought:

No one “loses their battle” and no one should be reduced to having lived only that part of their lives in the paragraphs, headlines, and memorials that mark their passing. That is how I feel, very strongly. It might be an easy expression, but it is a wrong one. It neglects all the possible ways a person might have lived a beautiful, full, impacting life. And if they only get that little paragraph of remembrance, should we not be celebrating their triumphs, rather than marking them as losers?

When it comes to illness, no one loses. A person may simply get dealt a shitty hand, and despite best efforts, life will take its course. I am tired of reading about all these lost battles.

And when it comes to being remembered in the media, we are not “Cancer Bloggers, Cancer Kids, Cancer Patients, Cancer Truckers, Cancer Waitresses, Cancer Artists, Cancer Models . . .” Just because it’s an easy headline doesn’t mean it isn’t totally degrading to the beautiful legacy that person left behind.

But how do you correct people? Can I tap someone on the shoulder while they post a memorial and say, “um, excuse me, I’m about to be an annoying pain to your already heartbroken self?” No, it’s just bad timing and disrespectful.

So it’s to be said now, at least here, and by one voice to add to others who have written about this: While those left behind may feel that deep, throbbing loss of a loved one, the life lived is far more valuable than a famililar but unconsidered add-on sentiment.

And that is all I have to say about that. For now.

In Which I Write About Dying

I watched a very good movie the other day, Seeking a Friend for the End of the World, and it has been hanging in my mind. I’ve had an emotional reaction to the film. Like, a real deep big tear-inducing emotional reaction.

Truth

The film starts off with the news reporter announcing that all attempts to stop this meteor have fail. The Earth will be destroyed in X number of days, and there is nothing anyone can do about it. Everyone on Earth is going to die. That is the end. Over. Dead.

And I guess, everyone on Earth is going to die. Over. Dead. One day . . .when their time comes.

Part of me wanted to turn off the film immediately. It would be too emotional, I told myself. But another part of me was so intrigued. This film would be one big conversation around death and life, and everyone in that story was on the same playing field. Terminal illness no longer mattered. Accidents no longer mattered. Health no longer mattered. Obligations no longer mattered. Fighting for your life no longer mattered. Everyone was in the same boat.

And it is from here in the film that the protagonist finds the love of his life, days before the meteor hits, and they end up in bed having a conversation along these lines right before the film ends.

She says, “I wish we had met earlier. Like when we were kids.”

And he says, “It wouldn’t have been enough time. There would never be enough time. We had to meet each other now. It had to be this way.”

As the meteor begins to hit the earth (chunks of it, I imagine), with crashing noises in the far off distance. he calms her fears by asking about her childhood, and how many siblings she has, and what her favourite colour is. And that is the end of the movie. They die. They were never not going to die.

Why can’t it be that easy to accept death? And why can’t I just admit aloud, “I think about dying all the time. Like every day. I’m afraid to push things off too long, because everything could change any moment. I know I’m going to die. There will never be enough time, no matter how much time I am given. It scares me. It breaks my heart that I might leave the people I love. It wakes me up. It follows me in the good times, and it confronts me in the bad times.”

And then not have someone respond: “You have to think positive. You will beat this. You are going to live a long time.”

Because that may all be true, but sometimes I really just need to talk about dying. A gentle conversation where I don’t need to feel guilty for my fears or emotions.

Zsolt says he is here if I want to talk about dying. I reckon it must scare him a little, but he’s here. He also said, that maybe he just doesn’t completely understand, because he doesn’t think about dying much at all.

And the thing is, I don’t want to dread death. I just don’t. I would rather live with it. Make it a friend. Know it will be a good thing whenever it comes, because a part of me will be going back to whatever I was before I got here.

Matching the theme of death, I’ve been reading Philip Pullman’s His Dark Materials series. There is a quote that one ghost girl says, as she dreams about really, truly dying properly.

“We’ll be alive again in a thousand blades of grass, and a million leaves; we’ll be glittering in the dew under the stars and the moon out there in the physical world, which is our home and always was.”

Isn’t that so beautiful? How is there sadness in that image? How is there any failure or lost battles in that?

I’d like to see death as going home, I would like the idea to not haunt me, but walk alongside me – and I reckon that will only happen if I admit it is there in the first place.

My name is Catherine, and I think about death. I think about it quietly, because I worry how others might feel if they knew this secret side of myself. And I don’t want to be told to keep fighting, unless, of course, it comforts someone to say it. Otherwise this is my life, and I decide when and how I live. I know how to keep living (forget fighting, that isn’t my style – it’s more about living and loving wholeheartedly, passionatly), and I think one day I’ll know when I am done. These choices are mine alone, and I’m pretty stubborn about those kinds of things.

I love living, and I plan on basking in life. Yes, I have fears. I worry over death. I worry over hurting others, particularly my husband. I am scared of what might come. But in the “now” I do my very best – you know? I just do my very best. I love my very best. There will never be enough time, but right “now” feels quite enough.

So all of this to say, dying happens. And I need to be able to talk about it sometimes. Maybe just here on the blog, where I talk about things that are otherwise too uncomfortable to share. And once in a while, I need to write a post that doesn’t ultimately strive to comfort those reading it, either.

This post is for me. I’ve said it. It’s done. And I’m still here despite all of that.

Sigh of contentment. I sure do love being alive.

 

SAMSUNG CSC

P.S. Zsoltster, szeretlek . Ne aggódj, mert én nem megyek sehova. Te vagy az én horgonyt .