Customer service

Hmm, I just called up Air Canada to arrange wheelchair assistance through the airport.

First, I must admit – it feels strange asking for a wheelchair. Wheelchairs should be for people who are really sick, or much older, or unable to WALK. I’m a 28 year old woman and I can walk . . . I just can’t walk for very long. My legs start feeling thick, I get tipsy (literally tipping over), and of course there’s fatigue.

I can understand someone’s surprise at my needing a wheelchair. But what I do not understand is being made to feel like an idiot for asking.

Calling the UK Air Canada customer service line today, I requested a wheelchair. The conversation went something like this (following the conversation about my reservation number, which was difficult in itself but quite possibly my fault):

Me: When I fly on the 14th, I’ll have just finished chemotherapy and will be really exhausted. Is there any kind of assistance I could have through the airport?

Lady: What kind of assistance do you want?

Me: Maybe a wheelchair or something?

Lady: Oh, wheelchair assistance.

I think the idea clicked into her head here. Before she wasn’t certain where to place me.

Lady: Is there any medical reason you need a wheelchair?

Me: I’ll have just finished chemotherapy and will be exhausted. I can walk a little, but not for long.

Lady: But is there any medical reason?

This is where I start to feel like an idiot.

Me: I’ll just have finished chemotherapy. I’ll be exhausted.

Lady: So you’ll need a wheelchair because you’ll be exhausted.

What is going on here? How many times do I need to say ‘chemotherapy’ and ‘exhausted’? Thinking about this now, I probably should have said: ‘I’m in the middle of chemotherapy’ – but totally forgot that fact during our conversation. But regardless, to have just finished chemotherapy and to be in the middle is essentially the same, because the effects are still felt a week or two (or more) after treatment.

Lady: I’ll put in a booking— sorry, a request for a wheelchair.

Me: (in my head: a request?) So I won’t know till I arrive if I have assistance?

Lady: That’s right.

At this point I want to cry, and don’t stand up for myself. Instead I say ‘fine’ because I feel like such an ass for even having asked.

Isn’t that crazy? Being challenged really throws me off; I totally lose my train of thought and can only say, ‘yeah, okay, fine’ like a stupid lemming. Mind you, if Zsolt is being challenged and asks for my help – no problem, I can tackle that issue. I’m a tough woman in other people’s battles. Not so great with my own.

Essentially, because I didn’t receive any sympathy from the Air Canada woman, I didn’t know how to handle myself. She treated my request like a form to be filled, which isn’t horrible, but at the same time – I’m not a form, I’m a person. My medical reason (apart from having been stated four times) goes beyond ‘exhaustion and chemotherapy’  – it extends to the fact that I need help, and I need it badly enough to ask.

Who asks for a wheelchair unless they need the bloody chair?

But she’ll put in a request.

Bah! It pissed me off enough to write, and maybe it’ll piss me off enough to call back later, when I feel less sorry for my passive self.

Though honestly, I had expected better.

Eating through chemotherapy

Isn’t it nice to have a green grocer? On Portswood we have about four of them; every morning they drag crates of fruit and veg to the store fronts, adding a sense of health and colour to the street. Five peaches for a pound, two-for-one strawberries, carnations in a bunch, and peanuts for your birds. I love visiting Galloways’s (my favourite grocer) and picking through the fruit. A full bag of vegetables (and I mean full, right to the top) normally costs less than £5.

This, to me, is an afternoon’s entertainment. That and people watching as I sort through the corn while trying to find the best looking husk. Portswood has all sorts of people, all sort of nationalities. We have one international food shop (largely Asian options, but also with Hungarian peppers), about three Polish shops (perogies – ruskie style), several Indian restaurants, one Thai place, a Canadian girl who walks around, a hot Hungarian, all the Uni students and who knows what else? Plus there are British staples like the fish and chippie, which only opens when the lady is inclined to cook, a Post Office, and a slew of charity shops.

So – is it clear that I’m in a good mood today? When writing about food, I’m either in a good mood or really hungry. Actually, I’m both. Chemotherapy leaves me hungry all the time, but forget about eating big meals because it’s impossible! Two bites in and I’ve had my fill (plus mouth sores make it difficult to chew). Instead I eat frequently in tiny bursts. At the moment cucumbers top my list for most refreshing snack; they’re easy on the mouth. (Frozen fruit is also very nice if your mouth is sore . . . so long as your teeth can handle the cold, and yogurt is always soothing).

Yesterday was a workday and I loved it. Despite feeling those waves of fatigue (and waves of heat – “Hello hot flash, shouldn’t we be meeting twenty years from now?”) it’s nice to get out of this apartment. Even the best flat in the world become terrible after being stuck there forever. How do those people on Big Brother do it? No wonder they all go crazy.

It’s a healthy change. Now Zsolt can work on his thesis without me asking him to wash the dishes, and I can simply meet with friends – do a little digitization – and enjoy an alternative, cancer-free atmosphere. Cancer-free is the goal. In my apartment there are drops, powders, shots, vitamins, pamphlets, binders, scarves, buckets, and get well cards . . . all cancer related. Every bit of it is necessary for support, but they’re also a reminder of this shit creek we’re swimming in. The library isn’t like that (apart from me in my scarf, clearly lacking hair). It’s a break from reality.

Now I’d like to try two experiments.

ONE: go bald in public.

TWO: go wig in public.

Both are options that intimidate me. Who knew it was so hard to be different? For some people (like the guy who carries a picnic basket instead of a school bag) being different is easy. Though I suspect for the majority of us it’s not natural to stand out. Visible disabilities, visible illnesses, visible visibilities – they don’t leave much choice. It’s either hold up your head, or – what? What’s the other option? Disappear? Hide yourself? Stop living? I don’t want to feel embarrassed, but I do sometimes and it’s such a shame because it’s stopping me short.

So here is the cure (I figure): Get used to it.  Everything pinches at first, right? New job, new home, new shoes . . . without a little wear they never get broken in.  And without getting used to it, no one will become accustomed to ‘bald Catherine’ or ‘wig Catherine’, not even me.

In order to shed the shame of being different, I have to get used to it. That shame shouldn’t even exist – but that doesn’t make it go away. Maybe I’ll start easy and go bald to that hippie art cafe downtown. Pretend I’m actually that cool. “Yeah, I get it. I shaved my head because I get it so bad. Organic-freerange-commune-hippie stuff rocks.”

Once done I’ll write and let you know how it goes. Until then, I’m going to eat some more food.

Taste buds changing

Good Goulash. Oh, how my taste buds are changing.


Yesterday evening, while watching Location, Location, Location with Zsolt and dreaming of our own prospective-possible-future house buying options, I opened a bag of crisps (potatoes chips, but since I’m in England, let’s go with crisps). Tyrrells’ chips are certainly tasty, and their Cider Vinegar and Sea Salt has a sharpness that I love in a good salt and vinegar crisp/chip.

Anyhow, happy and enjoying the show – we dig in. Stacy and Phil are selling a couple on a house that is priced £50,000 over their max budget, and I’m curious whether they can secure a deal. But that’s not the only interesting thing. Once my hunger subsides and I actually start enjoying my snack, I realize I’m not fully enjoying it. There’s no freaking taste! Zsolt is all ‘vinegar lips’ with the sour face, and I can hardly sense the salt. Honestly, it was like eating a plain baked potatoe – hold all dressing.

This isn’t the first time my taste buds took a vacation. Last chemo cycle I had an unfortunate incidence with some scones, which led to a break out of mouth sores, followed by an extremely bland meal of homemade sushi (couldn’t taste the side sauces), however during that last occurrence the taste came back.

Here is the question: will my taste return? Here is another question: will bread ever be delicious again? Right now, without the taste, it’s really quite dull.

But I guess all food is dull without flavour. Fortunately I can still taste goulash. It may be that my diet will be amended to all things Hungarian (peppers, sausage, kolbasz, sour cream and Eros Pista) and no things tasteless.

Anyhow, thank goodness for paprika.

This round of chemo has been different. It may be related to the Zolodex and menopausal symptoms, but oh-my-word it’s been emotional. How do people cope? It’s no fun to be sad; the mental barriers grow exponentially.

Thankfully I have support. Mom and Zsolt have been so good to me – Zsolt dances and encourages me to relax, Mom monitors my routine (which frankly is so easy to neglect when feeling weak, so without her I’d be nowhere near doing/taking everything to help recovery). Also, a nod to my Dad who has been a great help with this car insurance annoyance. Because of their help my mood has lifted over the past two days, and it feels good to feel good.

But this is all from something I realized during my last post. While biking up that mountain I was too embarrassed to ask for help. Yes, yes, there was triumph in biking up – but wow, getting a ride would have been nice.  After writing that blog I asked my mother to check on me more often, because I was slipping. She has been helping since – the support has been such a boost.

From taste buds to energy to emotions to treatment – this ride is long from over. For the time being, ‘help’ is the most important word in my vocabulary.  Thank goodness for the people who surround me. Gold stars for them all. 😉