Number six

Okay – here we go, treatment six. Any takers on whether or not I keep my cool (keeping cool, aka not vomiting)?  After last week’s experience at the hospital maybe that ‘exposure therapy’ will make a difference. Actually I’m optimistic.


This week I’ve got fresh blood, and rest, and  . . . hope?

Zsolt was reading that people’s number one fear with chemotherapy is nausea. I totally agree. Last treatment was my first without any nausea – and every moment for the following few days I waited to feel that lurch in my stomach. Wait, wait, wait. Didn’t happen.

Today I’ll wait again, with a little more hope that it won’t happen.

Things we’ll bring to the chemo ward:

My new toque (hat, beanine)

Eat Pray Love (I’m enjoy this book – though the chemo makes me tired, so maybe I won’t get around to reading today)

Mp3 player (only to drown out chemo conversations I don’t want to hear: “oh yeah, I was sick as a dog last week . . .” etc)

Blanket

Orange slices

Water

Patience

Last chemo I was so tired afterwards the only thing I could do was sleep. Even as the treatment progressed I become more and more desperate to drift away. It was something like a long flight – I can never sleep on those planes, but oh, do I ever fantasize about my bed. Same with the chemo chair, comfortable enough (for a chemo chair) but not my bed.

Anyhow – here we go again. Fresh blood. Rest. Hope. And no getting sick. No getting sick.

Fingers crossed. 🙂

Another question I need to ask myself: Having now missed two treatments, should I lose those chemo sessions or have them? Frankly – I don’t want them. But how will my overall success be impacted by missing treatment? One doctor said that I shouldn’t miss any. Another doctor (or was she the head nurse?) said that people often stop about 10/11 treatments because of the side effects. Who can I talk to in order to clear up this confusion? I don’t know. I just don’t know. Zsolt isn’t happy with my missing 2 treatments. One was fine, two makes him uncomfortable.

What the heck am I supposed to do, and how can I make an educated decision?

What is brave, anyhow?

I like watching movies; people are allowed to be brave, and we can be brave with them. Last night – against Zsolt’s wishes – we watched the Fellowship of the Ring (Lord of the Rings book one, film one). He says it’s a film for teenagers, but he thinks that of everything fantasy/science fiction. There is no point arguing, though obviously I disagree and am correct in my opinion . . .

Anyhow: Bravery.


Frodo  didn’t want to carry the ring. He wished he’d never found it, never been chosen, never this, never that. Never.

I wish the same all the time. As each day passes and chemotherapy approaches I wish I didn’t have to go, didn’t need the injections, didn’t get so sick. Didn’t this, didn’t that. Didn’t.

When BBC news reports a famous designer has died from breast cancer, I wish I’d never gotten it. Never started growing, never reached my lymph nodes, never this and never that.  Because I’ll never be 100% sure it’s not still inside. Reoccurrence scares the shit out of me.

So how am I meant to be brave? Why can’t it be like the films, where there is a moment of heightened music, tears in the eyes . . .  and then a short nod, steps forward. Challenged mounted. Why can’t I be brave without also being chicken-shit scared?

Last week I went to the hospital for a picc line flush and zolodex shot. It overwhelmed me; I threw up in the corridor, in the chemo chair, after my shot. The smell of the ward nauseated me, the sight of the patients made me cry, the click of the chemo drip made me gag. Bravery? No, I’ve tied a leash round my neck and dragged myself in. That’s not brave, that’s compulsory.

And I know, I really know, “it’s not just the body, Catherine”. It’s the mind. It’s the reaction, the conditioning. This is my work in progress. Throwing up is a release of anxiety, but there must be better ways. Well, I’m trying to scream. Who knows what the neighbours think, I scream each day and imagine all the fear and the nausea shooting out with the sound.

Will it work? I don’t know – we’ll see next Thursday when my blood is tested. I’ll scream in the middle of the ward, thus triggering mass panic amongst the patients and probably get committed. Or asked to leave the country.

No, I won’t really scream. Of course not.

Today is Monday.  In four more days I’ll be back in that green easy chair with a drip hooked up. This time it’ll be a different course of chemotherapy. They say it’s easier, “a little easier.” And since it’ll be every week, it sure as heck better be easier.

I can’t take much more of this bullshit self-induced sickness. Even if it is resetting my immune system and clearing out those nasty fucking cancer cells that may/may not be in my body. Rude unwelcomed FUCKERS.

Bright side: well I’m glad to talk about being scared.  That helps. We’ve changed the sheets (finally) to my pink rose on blue pattern. I haven’t thrown up in three days. The students are back at the university. And . . . Zsolt is washing the dishes!

Thank goodness for small miracles.

Getting a picc line

Finally I can write about the picc line. Here it is folks: having a picc line installed in your arm.

As you know, the consultant booked me in for the very next day – this whole thing was a whirlwind. Apparently she called the nurse who inserts the line and begged to add me to their list: ‘very persuasive’ said my picc nurse. Thank goodness for strong women with curly hair.

Zsolt and I arrived at radiology around 1.25, my appointment was for half past. Before we could sit down a short haired nurse appeared from the hallway and asked: are you Catherine Brunelle?

That’s my name, don’t wear it out.  (I didn’t actually say that)

‘Here you go, put this on.’

She gave me a robe – which I put on backwards at first – and I changed. It was a typical hospital gown with faded colours, thin strings, no coverage . . . anyhow, typical. Thank goodness I kept my jeans.

Next we (Nurse Picc, Zsolt and I) headed down a maze of white bright hallways till we reached a room filled with busy nurses. “We’ve got another list so we’re rushing now,” says the nurse. I nod despite not understanding.

Anyhow, the room where the picc line  is inserted has a very large machine as its centrepiece. This machine has a table, all kinds of cords and a giant circular x-ray camera thing, plus monitors on the side.

(All the while Zsolt has been with me. The nurse did say “and you’ll have to go when we start” but then I said, “Can’t he just stay for the needle?” and she caved. He was suited up with x-ray protection and allowed to hold my sweaty hand during the entire procedure.)

First: she scans my arm with an ultrasound and checks if my veins are accessible.  The ultrasound machine has this clear rubber piece that glides over your lubricated skin. The gel is cool, but the ultrasound is totally painless. Ultrasounds are the best; my number one pick for interior body scanning.

Second: Assuming a good vein is found, a tourniquet(?) is placed on the upper arm, and you are asked to lay on the table. Picc lines are generally inserted around the inner elbow or slightly higher, because the veins widen there.

Third: The nurse will sterilize the area – it smells like hydrogen peroxide. Have you ever used those bristle scrubbers to wash dishes? Well, think of that on your arm. Not painful, but very hygienic and smelly.

Fourth: Numbing the pain. (Zsolt came around the table to hold my hand as this all began.) The nurse has you lay out your arm on a side plank attached to the table. I looked away during this, but essentially a needle is given to numb the pain. This stings, but is most certainly worth it. Numb = good.

Fifth: It begins. Using the ultrasound the Nurse Picc is able to insert a catheter into the choosen vein. Then it’s all down to stringing in the line. I didn’t feel too much, but apparently some people feel a bit of pressure as the tube moves along.

Sixth: Tube in place, an x-ray is taken of the chest area. When I say x-ray, I mean a video. Zsolt could see my heart pumping on the monitor (he has seen way too much of me now. . . my bones, my heart, my guts . . . not so romantic.) and the nurses used this to judge whether the line is in place.

Seven: Wrapping up. Literally. My arm was insulated from the outside with layers of bandages and gaze, which needs to be changed every week. This past friday I had the dressings refreshed, and the nurse laughed at how much they’d put on. Now I have less – much less – and can actually see my arm.

So that is it. Following insertion I went right to chemo, which is an entirely different story I’m not ready to write about, however, the picc line worked very well. No sore veins!

And that is the story of picc.