Too early for Christmas?

I’m starting to think about Christmas. And no, I do not mean Christmas in Canada.

Every year Zsolt and I celebrate Christmas together, but in actual fact – only one of those celebrations has actually been on the 25th of December. Long distance means long distance families, long distance celebrations, long distance flights and, ultimately, high priced tickets. It’d be awesome (if not also exhausting) to celebrate Christmas in Canada, then hop on a plane and continue celebrations in Hungary. Awesome, but totally ridiculous. So, until that Star Trek transportation option becomes available, we generally spend the holiday apart.

But not quite. We have our own celebrate before separating, and it’s an event that I love. The month of December starts with the revival of old favourites on the speaker: Santa baby, White Christmas, Rudolph the red nosed reindeer, Silent night, Jingle bells, Baby it’s cold outside, and so on.

Next comes out the box stored above our dresser marked ‘x-mas decorations’. We have years old tinsel, paper snowflakes, greeting cards, lights, and a bent up Woolworths tree that cost £2 and stands at about 75 cm tall. The box also contains ornaments in the shape of stars, wooly sheep, pickles, beets, angles, birds, fish, and those tiny bells you can pull off Lindor chocolate figures. Whenever Zsolt and I travel to a new country(or any  place we like) we buy an ornament. So, nothing matches but everything has a meaning or memory attached.

And following the decorations I turn my mind to baking. Not sure how it’ll work this year, but I traditionally like to prepare for the celebrations with cookies.  My grandmother, Lulu, makes the most wonderful gingerbread cookies, and while my cookies pale in comparison – I still give it a try. Back when I must have been three or four years old my family would go to Lulu’s for Christmas, and I would watch the baking gingerbread men inside her oven. Then, on Christmas eve after réveillon, we’d put out a plate for Santa Claus with some milk on the side.

I bet Santa thought they were the best cookies on the block, or even in the whole of Montreal. Or the world, for that matter. I did too.

And so I bake cookies every year to celebrate with Zsolt. Running up to the occasion we might go to the Christmas Market in town, or Winchester if time (and energy) allows. And then we start watching the movies –White Christmas, Nightmare Before Christmas, How the Grinch Stole Christmas, Love actually. Any suggestions for a new film?

“Don’t get too Christmassy yet,” says Zsolt just now. “It’s only October. That’s more than two months.”

Pshhh. I’m waving away that idea. Heck! They don’t even celebrate Halloween in England. There’s nothing blocking my view of the upcoming festive season. Okay, okay! Clearly I’m getting ahead of myself. But what else is there to do? This year I only have a couple productive days per week – without planning ahead, where will I find the energy to make and do and prepare?

Well, anyhow. Chemo went well yesterday. Apart from the drowsy drug they fed me at the start, it was tolerable. I lay in the chair with my toque on and waited to leave, and once home things  improved. Second treatment no nausea. 🙂  Now it’s time to rest, which explains my drifting mind.

The final bit of Christmas with Zsolt is when we make a large meal and share presents and dance to our favourite music. So this year it might be Indian take away instead of chicken with stuffing. That’s okay. Zsolt will be there. I will be there. We’ll still dance.

It’s all two months away, but time is flying. It’s flying. I has to fly. Afterwards – after all this – it’s welcomed to slow again. Crawl if it wants. Time can turn into treacle for all I care.

Right now is good. I’m not sick, Zsolt isn’t sick, and we’re enjoying the sun through our widow. Now is good. But time is still flying, as it must, at least until this is all over with.

At which point, I demand a vacation.

Number six

Okay – here we go, treatment six. Any takers on whether or not I keep my cool (keeping cool, aka not vomiting)?  After last week’s experience at the hospital maybe that ‘exposure therapy’ will make a difference. Actually I’m optimistic.


This week I’ve got fresh blood, and rest, and  . . . hope?

Zsolt was reading that people’s number one fear with chemotherapy is nausea. I totally agree. Last treatment was my first without any nausea – and every moment for the following few days I waited to feel that lurch in my stomach. Wait, wait, wait. Didn’t happen.

Today I’ll wait again, with a little more hope that it won’t happen.

Things we’ll bring to the chemo ward:

My new toque (hat, beanine)

Eat Pray Love (I’m enjoy this book – though the chemo makes me tired, so maybe I won’t get around to reading today)

Mp3 player (only to drown out chemo conversations I don’t want to hear: “oh yeah, I was sick as a dog last week . . .” etc)

Blanket

Orange slices

Water

Patience

Last chemo I was so tired afterwards the only thing I could do was sleep. Even as the treatment progressed I become more and more desperate to drift away. It was something like a long flight – I can never sleep on those planes, but oh, do I ever fantasize about my bed. Same with the chemo chair, comfortable enough (for a chemo chair) but not my bed.

Anyhow – here we go again. Fresh blood. Rest. Hope. And no getting sick. No getting sick.

Fingers crossed. 🙂

Another question I need to ask myself: Having now missed two treatments, should I lose those chemo sessions or have them? Frankly – I don’t want them. But how will my overall success be impacted by missing treatment? One doctor said that I shouldn’t miss any. Another doctor (or was she the head nurse?) said that people often stop about 10/11 treatments because of the side effects. Who can I talk to in order to clear up this confusion? I don’t know. I just don’t know. Zsolt isn’t happy with my missing 2 treatments. One was fine, two makes him uncomfortable.

What the heck am I supposed to do, and how can I make an educated decision?

My hospital thanksgiving

“Cough, cough. Excuse me.

And that is how it started. I became sick on Tuesday. By Wednesday my little cold had graduated into a fever and pnemonia. Fevers are bad news when having chemotherapy.

hospital symbolWhy bad news? Well apart from the physical threat, which I was never too worried about thanks to blissful ignorance, it meant going to the hospital.

Has my dislike for hospitals has been made clear? Let me make it more clear: I hate hospitals. I distain hospitals. I fear hospitals.

This has been a problem for me, since, you know: cancer = hospital. But last Wednesday the universe conspired to solve that problem.

Once my temperature hit 38 degrees, Zsolt called the chemo hotline ; we were told to come in immediately, like right now guys, hurry the heck up. We went in immediately (minus the twenty minute wait for a parking space).

First was the A&E: we sit on the hallway while I suck on oranges to protect myself from the smell (and anxiety and people and injuries and everything). Zsolt holds my hand and we people watch.

Next I’m taken to the chemo ward and given a bed in a small room where five other patients are receiving their chemotherapy treatment. Despite laying on the bed with closed eyes, I can hear the ‘click swish, click swish’ of the drips and I hate hate hate being in that room. Zsolt continues to hold my hand.

There is a quiet period of me resting and Zsolt keeping guard. But this is a hospital and I have a fever, so quiet doesn’t last forever. In comes a doctor; she’s originally from Nigeria, has a husband and children in England, misses home but really doesn’t know many people there anymore except for her parents. This doctor has a good bedside manner.

I am asked questions. My temperature is taken. I give blood. I hack mucus into a cup. I am given oxygen. A seriously strong antibiotic is given by drip. More questions are asked. There is peeing into an impossibly narrow cup. We wait for a bed. My weight is taken (I’m shockingly light). Doctor one pierces my artery for blood while doctor two nods in approval. Blood pressure. Temperature. Nebulizer. Wait.

“You’ll have to stay the night,” says my blond doctor with the slight accent. I have trouble decideding whether or not I like her. Well, I could easily like her if she wasn’t directly connected to my shit-express adventures. But she is.

“Really? Can’t I go home?”

“It’s probably just a chest infection, but we have to be careful. It’s best if you stay a night or two.”

“Or TWO?”

Where was my Zsolt with his carefully crafted questions? Was this mad woman with the clipboard serious? Why didn’t my temperature stop rising? Would I miss chemo this week? Once we were in the hospital it was as though a current took us. Decisions were made, plans formed, information sometimes given. Staying wasn’t a choice, it was a decision – and not mine. But we were in the current, and frankly, I was sick with a temperature. Can’t argue temperature.

They gave me a single room, thank goodness for small blessings. They gave me a single room on a night when patients waited 12 hours for a bed. Patients were being turned out, asked to leave and make room for new people (“Sorry, you aren’t sick enough”). Had someone been kicked out so I could have a bed?

And there followed five days of waiting to get out with rises and falls in my expectations; first I thought it’d be one night, then maybe two, then maybe three, then maybe forever. The doctor read my face when she said I’d have to wait longer: “We can’t let you go until you’re stable.”

Ahhhh. Okay, fine.

But you know what? I was getting used to the hospital – getting used to the smells and the IV and the steady tests. In my private room I was able to close the door from the rest of the world, but at the same time – couldn’t avoid that I was a patient . . . couldn’t avoid all things hospital.

Slowly but surely it became easier. I hated the situation less.

People who I could never hate: the nurses (except maybe the ones who inject my chemotherapy . . . and I don’t actually hate them, but their presence makes me sick)

Nurses! Again you were wonderful. Funny and supportive and patient. They would come into my room and talk about their day, take a seat to rest, show me how the machine worked. One nurse even took my, hers, and Zsolt’s blood pressure in the middle of the night, and we all laughed when the machine went blank on Zsolt’s trial – judging him to have no pressure at all. He is a fairly relaxed man.

It was a woman’s world; the nurses were a balance between chaos and composure. They took the time with me that the doctors couldn’t afford.

And that is why Bedside Manner is as much a treatment for illness as the drugs driping into our veins.

Nurses and doctors (apparently Dr Blond had mentioned to another doctor – Dr Artery Stabber – that I desperately wanted to go home for Christmas. I appreciate that she remembers, makes me like her a bit more) are healers when they stop looking at the chart and acknowledge the person. Not just medical professionals.

Point in case: Dr Busy. This woman comes into my room with her nose in the chart, one of the nurses follows her and smiles at me. “Where is this lady’s blood sheet?” demands Dr Busy. “It’s not in the cubby” replies Nurse Smile.

Dr Busy: “Yes, it is in the cubby. I put it there myself.”

Nurse Smile: “I can’t find it.”

Dr Busy: “It’s there. I put it there myself last night; find me the chart.”

And out goes the nurse, chastised in front of a patient and probably fuming.

Finally Dr Busy, after thirty awkward seconds of her making more notes and me waiting in silence, looks up and announces herself.

This person put me in such a rotten mood, it was hard to contain my disgust. LOOK AT PEOPLE, SAY HELLO, PUT ME BEFORE YOUR CHART. Oh, she ticked me off. Clearly this is an intelligent woman, but what a first impression to make. The only other time I saw her again was when she came in the next day on the heels of another doctor (only male spotted entire week, except for the porter) and didn’t look up, didn’t take her face out of that bloody blooming chart.

Here is my point: Medicine is more than medicine. Most people, thankfully, realize that truth. My nurses were wonderful for helping through such a frustrating few days. It was all about bedside manner.

And apart from being in the current with that ‘you’ll never escape!’ feeling. . . well, it was restful. Zsolt was allowed to spend nights beside me on a cot. We read books and magazines like we were on a beach in Cuba. I didn’t have to make a single meal, nor clean a single toilet. And there was a quietness that – while a bit boring – made me slow down.

It made me slow down, it made me calm down. Hopefully it will make chemotherapy easier. We’ll see next Friday whether or not I vomit at the sight of that medal tray with the drugs. This Friday’s chemo was cancelled due to illness. So that puts me two sessions behind my target (and yeah . . . Christmas in Canda . . . hmm.)

And then – day five – we were released. That was it, over. Happy thanksgiving.

When we arrived home the apartment building was rocking with some easy-going Caribbean flavoured dance music. People were sitting in the staircase, children were playing in the yard, food was being passed around on paper plates. Anna, my neighbour, said they were giving thanks. Thanksgiving. Her husband had had an operation and it’d gone well. They were giving thanks to God. (Them and the thirty some people stuffed into that micro apartment)

I thought it was such a beautiful idea – a different sort of Thanksgiving.

We gave thanks a different way too, not with Turkey or stuffing, but by changing our hospital clothes for summer attire and going to the common to play Frisbee in the sunshine. What a day, a perfect autumn afternoon. We were thankful for each other, for the weather, for the freedom.

And soon that will be how it is all the time. Soon this will be over and life will go on. If ever there were a time for laughter and dancing  and music, that would be the moment.

I look forward to giving thanks.