Long-distance Lunching

Today we celebrated my grandmother’s 19th birthday. That’s right – not 91, but 19. My aunt made lunch, my dad made cake, and everyone gathered in the backyard to enjoy the weather. The family passed around food and we chatted about upcoming weddings, jobs, friends, pickles . . . it was an easy-going Saturday afternoon.

We celebrated, despite my being 5,378 km away. And though I couldn’t smell the barbequed quail, and  didn’t run indoors when the bees came, and couldn’t help extinguish any candles – I did talk with my grandmother, and sing happy birthday, and enjoy the company of my whole family.

Being away from home becomes easier with video chat. It isn’t the same as really being there, but it’s the next best thing.  Long distance relationships (couples, families, friends) have had a hand up since the arrival of email, then icq, then msn, and now skype.  I cannot imagine living this far from my family without being able to still see, talk and relax with them.

Next we need virtual hugs. Maybe the creators of google can get on that. Until then Zsolt can step in with a squeeze and a kiss. (not that I snog my parents, but you know I mean . . . besides, who wouldn’t want a big kiss from Zsolt? Except maybe his parents . . .)

Joyeux anniversaire, Lulu! Il était bon de vous revoir.

Low platelet count

Here is a disappointment. This week’s blood results are back and my platelet count is low. Platelets, (according to my google search and merek.com) help with blood clotting – so now I need to be very careful of getting cuts, bruises, etc.

Why else does this suck? Because it means postponement of chemotherapy, which also means my Christmas plans have now been spoiled. So, I’m sighing to my computer screen because I really did want to go home.

I will go home. Sooner or later, I will go home – and one these years, this one or the next, or the next, my family and I will celebrate Christmas together. Maybe something can be worked out . . . maybe I’ll just have to buy a proper ticket  . . . maybe it would be less pressure to forget travelling to Canada and just celebrate with Zsolt.

I’ll tell you what though, if I do have to stay in England, we are going to buy a proper tree. Not that I don’t love my Woolworth £2 mini wire tree, but a proper tree would be nice – wrapped with lights and meaningful Christmas ornaments. Zsolt and I collect Christmas ornaments from wherever we travel. We have a woolly sheep from Iceland, a flamingo from Niagara on the Lake, eggs from Hungary, bears from Canada, and glass pickles from Brussels. There may be more, but right now I can’t remember and the Christmas stuff is tucked away. Hmm, however . . . the apartment is quite tiny. Okay, if we do have to stay in England, then I am going to buy a proper wreath (and maybe forget the tree), and we’ll make a mountain of cookies, and Bing Crosby will croon White Christmas in the background 24/7 as we roast chestnuts on our open stove top. I really do love all that.

Anyhow, on the positive side my arm has been aching and a break from injections is very welcomed. Plus, for a change, I get to feel healthy a bit longer. Two weekends in a row where I don’t want to hibernate – that’s not bad.

I’ll take this as a holiday, and hope the rest works out. It’s a disappointment – but, well, these things happen. Cry a little and get on with not being sick. I won’t be sick for another week. At least I have that.

PS. I am thinking of having a picc line installed into my left arm. That is a line they feed into the vein and it goes right along to your artery. They do this to stop the complications of missed veins and pain in the arm. It would mean having a plastic tube sticking out of me, but also I think the stress may be less. My arm has been rather sore lately – it’s making me dread treatment. A lady my mother knows had this line put in and says she would never go back to ‘in the vein’ injections. Something to think about . . .

Eating through chemotherapy

Isn’t it nice to have a green grocer? On Portswood we have about four of them; every morning they drag crates of fruit and veg to the store fronts, adding a sense of health and colour to the street. Five peaches for a pound, two-for-one strawberries, carnations in a bunch, and peanuts for your birds. I love visiting Galloways’s (my favourite grocer) and picking through the fruit. A full bag of vegetables (and I mean full, right to the top) normally costs less than £5.

This, to me, is an afternoon’s entertainment. That and people watching as I sort through the corn while trying to find the best looking husk. Portswood has all sorts of people, all sort of nationalities. We have one international food shop (largely Asian options, but also with Hungarian peppers), about three Polish shops (perogies – ruskie style), several Indian restaurants, one Thai place, a Canadian girl who walks around, a hot Hungarian, all the Uni students and who knows what else? Plus there are British staples like the fish and chippie, which only opens when the lady is inclined to cook, a Post Office, and a slew of charity shops.

So – is it clear that I’m in a good mood today? When writing about food, I’m either in a good mood or really hungry. Actually, I’m both. Chemotherapy leaves me hungry all the time, but forget about eating big meals because it’s impossible! Two bites in and I’ve had my fill (plus mouth sores make it difficult to chew). Instead I eat frequently in tiny bursts. At the moment cucumbers top my list for most refreshing snack; they’re easy on the mouth. (Frozen fruit is also very nice if your mouth is sore . . . so long as your teeth can handle the cold, and yogurt is always soothing).

Yesterday was a workday and I loved it. Despite feeling those waves of fatigue (and waves of heat – “Hello hot flash, shouldn’t we be meeting twenty years from now?”) it’s nice to get out of this apartment. Even the best flat in the world become terrible after being stuck there forever. How do those people on Big Brother do it? No wonder they all go crazy.

It’s a healthy change. Now Zsolt can work on his thesis without me asking him to wash the dishes, and I can simply meet with friends – do a little digitization – and enjoy an alternative, cancer-free atmosphere. Cancer-free is the goal. In my apartment there are drops, powders, shots, vitamins, pamphlets, binders, scarves, buckets, and get well cards . . . all cancer related. Every bit of it is necessary for support, but they’re also a reminder of this shit creek we’re swimming in. The library isn’t like that (apart from me in my scarf, clearly lacking hair). It’s a break from reality.

Now I’d like to try two experiments.

ONE: go bald in public.

TWO: go wig in public.

Both are options that intimidate me. Who knew it was so hard to be different? For some people (like the guy who carries a picnic basket instead of a school bag) being different is easy. Though I suspect for the majority of us it’s not natural to stand out. Visible disabilities, visible illnesses, visible visibilities – they don’t leave much choice. It’s either hold up your head, or – what? What’s the other option? Disappear? Hide yourself? Stop living? I don’t want to feel embarrassed, but I do sometimes and it’s such a shame because it’s stopping me short.

So here is the cure (I figure): Get used to it.  Everything pinches at first, right? New job, new home, new shoes . . . without a little wear they never get broken in.  And without getting used to it, no one will become accustomed to ‘bald Catherine’ or ‘wig Catherine’, not even me.

In order to shed the shame of being different, I have to get used to it. That shame shouldn’t even exist – but that doesn’t make it go away. Maybe I’ll start easy and go bald to that hippie art cafe downtown. Pretend I’m actually that cool. “Yeah, I get it. I shaved my head because I get it so bad. Organic-freerange-commune-hippie stuff rocks.”

Once done I’ll write and let you know how it goes. Until then, I’m going to eat some more food.