Follow up ultrasound

Blarg. Today I went to the hospital for ‘follow up’ scanning. This is a check-up that every post treatment person needs to endure – and while I say, ‘endure’ it is not because of the hardship of getting a scan. No. Getting scanned is fantastic. This is exactly what I need to monitor my health, and frankly I feel very lucky that my oncologist, Dr Canada, has sent me for a variety of tests.

(Over the next month – October to end of November, I am/was schedule for an abdomen ultrasound, chest x-ray, and chest MRI. Also, I’ll be applying for genetic testing, but haven’t yet received those papers.)

So – these tests, as Zsolt reminds me, are fantastic. But what’s not fantastic is the dread.

Dread sucks. Uncertainty sucks. Not immediately having my results sucks.

So today was the abdomen ultrasound and chest X-ray. Please, let me tell you all about them.

I arrived at the Queensway Carleton and Zsolt, Dan and I found our way to the x-ray department. Oh my goodness. You can certainly see that these folks don’t have big money. Unlike the Ottawa cancer centres (designed to be like day-spas and brimming with fountains, sky light and marble), x-ray looked like the basement of some Halloween-themed mad doctor’s clinic. Blue walls with scuff marks, people clustered in a tiny wait area, low ceiling, bad smell . . . here they will give me a scan that is essential for maintaining my health, and yet all I can think of is how crowded it feels and how the walls need repainting. Apparently, as a cancer patient, I’ve been a little spoiled.

Anyhoo – Daniel hightails it out of the room to wait at Tim Hortons. Zsolt and I check in and take a seat. Eventually I’m called and a lovely nurse takes me into her ultrasounding room. It’s dim, I remove my top and stick on the gown (also ugly, and not so fantastic at keeping me modest). My bladder is BUSTING, since I drank tons of water an hour before as instructed, and the nurse says that is a good thing – the busting.

She squirts goo onto my belly.

(As I’m typing this, Zsolt just gave me a hug. He is my wonderful.)

She squirts goo onto my belly and begins the scan. This lasted about thirty minutes, partway through I was allowed to pee (whew) and all the while I attempted conversation.

Me: So, what are you scanning?

Her: I’m scanning everything, your uterus, ovaries, bladder, liver, kidneys.

Me: Hmm, I remember my first ultrasound, the doctor looked at my breast on the screen and knew it was cancer. Though she didn’t tell me then.

Her: Yeah, we’re not allowed to say.

Me: Hmm.  Though she knew on the day. Any chance you can say something?

Her: Sorry, I can’t say anything in case it’s wrong.

Brutal. So I just laid there the rest of the scan thinking, what does she see? And not knowing. Beside me, for company, was a baby poster. Babies and ultrasounds . . . well, I don’t want to get depressive, but babies and ultrasounds are what I used to imagine when thinking about blue goo squirting onto the belly. Not this other stuff.

So who knows how today went? My hope is that everything is fine, fine, fine. One possibly good sign is that when she scanned my ovaries from outside my body, she said:

“Okay, I got quite a good scan of your ovaries so I’ll give you a choice. Normally there’s no choice, but I have quite a good image. Normally we insert this device into you, and scan your ovaries from the inside. But this image is clear enough that it’s not absolutely necessary. You can decide.”

So here is what I think. If there were any problems with my ovaries or uterus, she would have insisted on doing the ‘inside’ scan, right? Cause that makes all kinds of sense. But she gave me the choice, as though it wasn’t necessary, as though everything looks fine.

I asked her to do the inside scan regardless – because I was already there and already gooey. And I’d hate to go back to that stinky x-ray waiting room unless absolutely necessary.

And then I had the lung x-ray, but that takes about two seconds and there was little time to worry over the state of my lungs.

And then we left the hospital.

Ever since today’s hospital adventure I’ve been . . . hmm . . . unsettled. You know? I’ve been . . . ruffled. Frankly, someone had better tell me soon that everything is fine, fine, fine and write me a clean bill of health. Someone needs to do this soon, otherwise I might get a little more than ruffled.

The good thing about scans is that  ultimately they can give relief.

The bad thing about scans is that sometimes, they don’t go your way.

But I think – I really think, that I’m fine. Today I am fine. Tomorrow I will be better. And in two weeks I’ll go knocking on  my family doctor’s door and get those results.

AH. Life is so sweet when we can forget, forget and just live on. But it doesn’t really work that way, eh? I guess not. Not in my case. Or rather, at least not today.

The conference went well

Okay I’m heading for the bed because tonight I need to stay up late (like past ten) so that I can review the Ukrainia concert that is going to be happening. Honestly, the review will probably go like this: they were awesome! And we danced.  Because I’m no music critique.

But I wanted to first stop in here and tell you about the conference. It went great. Great! The entire audience was composed (with a few exceptions) of nurses. Wonderful, beautiful, ever-learning nurses.  I know that as a patient, I might over-idolize the people who helped me (and demonize, since my mood can change depending on the drugs getting pumped) but when it comes to nurses, well, can they get enough praise? Like I said in my earlier post, during treatment there was no way I could handle saying what I really felt – but last Wednesday in the Midland country golf course, Catherine told it like it was.

And how they had helped.

What was inspiring.

How the journey became easier.

Which was all down to simple humanity. People being kind.

Anyhoo – they seemed to enjoy the speech, enjoy my way of presenting (Dad was all, “don’t stand behind the podium, get a clip-on mic and no power point. So I followed his urgings to, I believe, my benefit. It was a great talk), and most importantly they enjoyed my content. Hugs followed. Many, many hugs.

So it was a day to smile. Zsolt and I had a small vacation from Ottawa, and the conference was really enjoyable. Two thumbs up for a positive experience. May there be many more in the future.

Give them the truth

Good afternoon, lovely people. Welcome to another great day 🙂

I’m in a good mood today – and you wanna know why? Because I’ve finally finished prepping for my talk. Okay, not exactly finished. (My mom has a surprise waiting when she gets home from work: me giving her this speech!). But the structure has been hammered out, and I feel good about the contents.

You know, when I agreed to give a talk on the ‘patient experience’ for this upcoming Palliative Care conference, I knew that going back to the dark times might be difficult, but I didn’t expect it to also be relieving. In this talk I dig down into some of the hard packed crap that made treatment particularly difficult, and I’ll be exploring it with the very people whose jobs are to help alleviate that stress. So how great is this? Certainly a group I can appreciate, and now I get to show them a little of the ‘hard truth’ I never brought with me into the hospital.

None of my nurses knew of Bumpyboobs during treatment. None of the doctors knew either. Because really, they inspired a lot of that content, and I didn’t want any grudges held against me.

But this Wednesday in Orillia I get to be honest. Really, truly honest. And we get to go over the highs and the lows.

I’m looking forward, and hoping my knee caps don’t shake too much.  (Oh, I used to debate in high school and as I was up there talking, my knee caps would shake and shake and shake. Good thing I wasn’t carbonated.)

On a different note – I think November ought to be the month I gear down and get internal. Falling leaves, preparations for winter, the lessening of sun – can there be a better moment for down shifting? What with the Writers Festival blog, Narrative Nipple design, the palliative care talk, and the writing course, I’ve totally neglected any actual, love-of-my-life writing. There are projects that need completing and characters who deserve my attention.

And so November will be a time to breath. I’ll keep you updated on how far that takes me. Resolutions are not promises, but I really do want this time to write. (And not be distracted, Catherine, so stop surfing the internet!)

You know, there was a time when I craved a busy life, a life that wasn’t restrained to the treatment chair or bed. And now I’m living that beautiful reality. It feels good. It feels great.  

And today I’m happy. 🙂