My Zoladex/Goserelin story

Zoladex is now over. It’s been a memorable journey, which I’d like to mark with a quick recap of injections. Five months of chemotherapy means five injections of Zoladex, otherwise known as Goserelin. Here goes (Dad, be aware, you might not want to read this – and that goes for anyone bad with needles):

Shot one: With time pressure, I agree to have the shot and leaving my decision on contiung for later. Zsolt, Mom and I had spent a busy afternoon trying to weigh up the pros and cons of Zoladex – will it save my eggs from chemo? Will it screw up my body? Are there any answers?

The message boards are full of stories about early menopause, several cases brought on by Zoladex, but every patient’s experience is different. Some women have terrible symptoms (hot flash, killed sex drive, aching body, mood swings) other women have less. But like the doctor said, “We can’t say how you’ll be affected.”

Anyhow. Immediately after my first AC chemo treatment I go into a consultation room and lay back on the bed. My shirt is rolled up, the nurse preps for the injection.

“Okay I’m going to shoot you with a numbing spray, then insert the needle. Tell me when it’s cold.”

I had heard she was the Zoladex expert. . . looking back I’m not positive about that assertion, but it was my first shot and I cannot be sure. She never again gave me a needle.

She sprays me with liquid cold. I say, “Okay, it’s cold.” And with me squeezing Zsolt’s hand, she injects the needle into the ‘numbed’ skin.

Sorry, did I said inject? She buries the damn needle – it’s length was never ending. All the while I’m breaking Zsolt’s hand and moaning with shock, wanting to kick this woman back, but instead simply repeating: “Ohhh my God, ohhh my God” over and over.

“Almost there,” says the Nurse One. And she pushes further.

*Click* goes the needle and the pill is inserted; I have officially entered menopause. The nurse takes out the rod of a needle: “There we go, all done!”

Yes, we were done. I was never getting that crazy-ass shot again.

Shot two: I am prepared for pain.

Having receiving advice from the doctor that while Zoladex isn’t unquestionably proven to protect fertility it’s also not shown to hurt, I decide to have another needle. By this point my hot flashes had set in, and time to time I would have back pain.

This is also the start of the nursing medical mantra: “Wow – big needle!” Because for a lot of these ladies (and gentleman) they’d never given, nor seen, a Zoladex shot before. Great.

Anyhow – all the nurses are avoiding me after my treatment as I wait in the green chair. I’d finished my AC about fifteen minutes earlier but still need my shot. Problem was, none of the ladies wanted to administer the giant needle. Ha, well, too bad for everyone.

Like fishing, we snagged one. Poor Nurse Two was passing by and inadvertently made eye contact.

She stopped. Looked away (looked for rescue?), and sighed.

“Okay.”

And off she went to prep for my Zoladex injection.

Frankly, this second injection was far less painful than the first. Maybe it’s because I knew what to expect, maybe not. Zsolt said that Nurse Two inserted the needle at a very shallow angle – but it hurt wayyy less, so who cares? And all the time she says, “What a big needle. That’s a big needle.”

*Click* over. We all laughed as I said thanks. She’d done a great job.

Shot three: Vomit bucket!

At this point in my therapy even the smell of chemo made me sick, but that wasn’t all . . . The doctor had called that previous Friday to say my platelets were low and I needed to miss a week of therapy. I felt crushed by the idea of missing Christmas in Canada – so my mental health was already fairly low. On top of that, I had to come into hospital and get a giant belly needle. Yay!

Arriving at the hospital, I made it halfway down the hall before throwing up. But you don’t need those details. Let’s just say, there’s a certain corridor where I often relive the public shame of vomiting without a bucket.

But I still needed my shot.

Going into the ward, I waiting for my picc line change (every week bandages must be changed, no skipping) and Zoladex. Okay, I vomited again as my bandages were changed – oh, did I ever hate that smell . . . actually, I hated the entire place, the whole establishment! And afterwards a new nurse, Nurse Three, arrived on scene with my third shot and a student nurse observing her work. Nurse Three and the student were about my age, maybe younger. I always enjoy the young nurses because I feel a sense of equality. They might be a nurse, but I know what they looked like drunk off their ass during fresher’s week; working with students for the past three years, I just can’t see these ladies as ‘in charge’ despite them being ‘in charge’. Maybe it’s ageist? But we have a different type of rapport, which I enjoy.

Right: teaching a student how to inject Zoladex.

“You need to get a good pinch of skin.” She pinches my belly, and yeah – she pinches really hard, harder than necessary, like, man, she has a handful of my belly, and there isn’t much to start with! The student nurse is making ‘oh yeah’ type noises. I’m holding Zsolt’s hand and cringing at the ceiling.

“Then you use the cold spray.” She shoots me with the cold spray. I tell her when to stop.

“How long does it last?” asks the student nurse.

“Oh, about a minute or so.” No, not true. Cold spray lasts seconds, yet I don’t correct her. She’s with a student; who wants to look back in front of a student? Mind you, that young woman now has the wrong impression of cold spray. Cold spray is wearing off. Nurse Three gets out my ‘giant needle.’

“Wow – giant needle,” says the student nurse.

“Huge,” agrees Nurse Three.

Awesome.

“Okay, so you put it in like this. Ready?”

“Yep,” I reply. And in goes the needle.

Hot damn that hurts! I’m doing my best not to freak-the-fuck-out, but it’s hard. Young nurses may be cool, but what pain! Zsolt’s eyes went saucers as I’m starting up into his face. Later he told me that Nurse Three inserted the needle at a ninety degree angle. So, squeezing my blob of belly fat, she vertically inserts this giant needle, and obviously it doesn’t go in far enough so she needs to push further, and further, and further.

*Click*

Wow, I’ve toughened up. First injection for the MRI and I passed out. Now I’m cringing my teeth as metal rods are being forced into my belly muscle. Ugh. Gross. But also, kinda amazing I’ve come this far. And afterwards, as always, we laugh.

Maybe laughing helps dispel the tension? We always laugh.

Shot four: A male nurse was training in C3, day-case unit, where I get my chemo. He’d never seen such a big needle, and couldn’t for the life of him stop letting me know.

Wow that’s a big need. Woah. Boy, I’ve never seen such a big need. Okay I’m going to stick it in, ready? Yeah? Are you sure, because this needle is huge!

I was looking away, but Zsolt later reported that Nurse Four used a very shallow angle. I hardly felt any pain, so despite all his going-ons it was a great job. (The lead nurse – the nursing mother – even asked him to stop telling me how big the needle was, but this poor guy couldn’t contain his amazement.)

Shot Five: Oh good, my last needle. Bring it on, Baby.

Again, like everyone else, Nurse Five had never given a Zolodex shot. In fact, she didn’t even look at the needle till before insertion – so this time there weren’t any exclamations about size. But she was nervous for sure.

“Can you please shoot me with cold spray right before injecting?”

By this point I know what I like. She was going to use cold spray immediatly before injection, and she’d be inserting at a thirty five degree angle.

But you can’t control a person’s nerves.

There we are behind the privacy screen, and I can only imagine what the other patients thought. Between the nurse asking, “Are you okay, Catherine?” as she slowly inserts the needle and I cringe at the ceiling, to my replying, “Yes, yes! Don’t worry – keep going!” to her asking, “Are you sure you’re okay, Catherine?” to my urgent assurance of, “Yes! Please! I’m okay!” And our voices are getting louder and louder and louder. . .

Well, who knows what others thought.

*Click* it was over. We laughed. For all the trauma, we laughed. It didn’t hurt this time round, it was just slowwww. But she did a good job. They all did.

And there you are: my Zolodex story. If  you’ve made it this far in reading, congratulations – you are tough. I hope your stomach is fine; mine’s full of holes.

Would I do Zolodex again? Whooo . . . please don’t even ask me. I hope I never need to do any of this again. With my final injection in place, the pill should last about a month. After that it’ll be a waiting game with crossed fingers. Please, oh please let my period return.

Last night I dreamt that Zsolt passed me a crying baby and I held it against my chest. It cried and cried, and I patted it’s back while singing a Jewel inspired lullaby. Eventually the little one quieted. And in my dream I said to Zsolt: okay, let’s start trying.

Then I remembered I was in the middle of chemotherapy, and next is radiotherapy, and after that it’s years worth of Tamoxifen. But nevertheless it was a beautiful moment, even if only a dream.

The shots were worth it, because I do want to have a family. Like my oncologist said – they don’t hurt, and they may help. Well, I’m taking all my chances; you’ve got to.

And that is the story of Zoladex.

Gotta sleep tonight

Six!

I’m done with counting up. It’s time to count down. Woohoo!


As of tomorrow noonish, that’ll be SIX, then next week five, then four, then three, then two, than one, than ZERO. Happy new year!

While discussing scheduling with my boss, he said to me today, “I’m not going to stop you going home for Christmas, I don’t think anything could stop you.” 🙂  He’s mostly likely right. The juices are flowing between Canada and England, connections still need to happen but things are looking good. I don’t want to jinx anything by delving into details before they’ve settled – so let’s just say it’s looking good. Will discuss more later.

And speaking of later . . . after chemo come radiotherapy.  My oncologist will be setting up a meeting with my soon-to-be radiotherapist (is that a real term?) At which point they’ll let me know how many treatments I can expect. Because I don’t want reconstructive surgery I should be given less as opposed to more radiotherapy. Fingers crossed that’s true, because I hear it burns.

Way back in July while meeting with the surgeon, reconstructive surgery was brought up in conversation.

“That breast is rotten, it’s got to go. Good news is we can build you an ever better breast.”

No thank you, sir. It isn’t his breast sculpting abilities that I question, it’s my patience level. When given the choice (a choice that doesn’t involve life-threatening growths) I always choose NOT to have surgery. I’m a ‘just say no’ kinda girl. Though I sympathise with women who want to have the reconstruction. Losing a breast sucks and the chance to get another is appealing, but the idea of more scalpels and drugs and pain is not.

So far in this post I’ve talking about counting down, going to Canada, radiotherapy and breast reconstruction.

I’m rambling.

Why?

Because it is nearing bedtime in the Samson/Brunelle household, which means if I don’t spill my thoughts now they’ll keep me up tonight. Two nights in the past week I haven’t been able to sleep. There is tossing and turning and attempts at meditation – useless! The only cure for my insomnia is writing. It helps the chatty part of my mind deflate, and after I’ve written three or four pages of ramble, drifting to sleep becomes easier. Poor Zsolt gets woken up by the light and the clicking pen. But what can I do? I’m a writer with urges.

Apparently Paxlitaxel can cause insomnia. I’m not sure if that’s an official side effect, but I’ve read about it on the message boards. Paxlitaxel strikes again, another women has a sleepless night. And then comes morning, by the time I’ve finally drifted off and entered ‘log’ like sleep, well the neighbour babies start crying and the sun starts shining and Zsolt wakes up to wash the dishes.

Frankly I’m getting more tired as each week passes. The night is still a blessed time of calm, but when my mind refuses to shut down it turns into a game of patience. Can I be patient enough to not flip over, to not blow my nose, to not kick my legs. The answer is inevitable: No. I must flip over and blow my nose and kick my legs. I might even do it all at once.

So despite my mounting fatigue, I’m having trouble sleeping. It doesn’t make sense.

Please excuse my rambles, but they won’t shut up without expression. Writing is my preventative medicine to a sleepless night, so hopefully this works. But to be sure I’ll stop typing now and turn to my journal – that’s a whole other sort of expression . . . the page and the pen and the ink, they’re so physical. My fingers ache from the uncomfortable pen shape, and unlike the keyboard, the journal page actually resists my scribbling – writing is an effort in my journal. It’s an exercise. It’s a workout.

Maybe that’s why I’m able to sleep.

Anyhow – to the journal. See you on the other of SIX.

P.S. Oh my word, I almost forgot, tomorrow is my last Zoladex shot.

*Sigh* What a freaking relief. I’m so sick of needles in my belly, if I never have another needle in my stomach I’ll be a very happy woman. After this shot I’ll have one more month of menopause, and then – fingers crossed – my period will come back. Please let my period come back. Bring the flow, bring the inconvenience, bring the PMS if it means that one day I can be pregnant. One more month of menopause . . . until actual menopause, which is hopefully still a long way off. These hot flashes are positively melting me! Sweat drips down my bald head, and I’m forced to strip in public. Off with the jacket, off with the head scarf, off with the sweater, off with everything! Or almost.

🙂

Off to write!

Bonjour Lulu!

So I’ve been posting a lot lately – it’s a response to Lulu, who asked about my posting, or lack of posting. Well here you go Lulu! Freshly pressed, as they say here.

Sunday afternoon, between my waves of sleep and hot flashes, Zsolt and I put up the Christmas tree. And please, don’t check your calendar – yes, it’s still November. But if I do end up leaving for Canada (if, when, etc) our Samson/Brunelle family needs to have covered a certain amount of festive celebration.

The stockings are hung, the tiny tree is standing and covered with ornaments, tinsly stuff is around the doorway, and we have Christmas music playing. I love it.

After decorating the tree we snuggled down and watched The Santa Clause, which Zsolt said was the stupidest movie ever (fart jokes are never a good sign) – but still sat through because I got a kick out of it. Funny how the cheesiest films can hold a place in our heart so long as they’re connected to a memory. I remember watching The Santa Clause in my basement with Mom and Dad as the wood fire burned. Mind you, I fell asleep toward the end and Zsolt had to carry on watching (I fell asleep on Zsolt, so he was stuck there). Poor fellow : )

Today we are still in the Christmas cheer, but life hasn’t stopped. Yesterday Zsolt discovered MOULD along the skirting in the bedroom, and behind the washing machine (and around the blasted windows, though we already knew about that). No wonder my eyes itch. AHHH. No wonder. The idea was that he’d clean it all away yesterday while I went in to work (which I paid for later in the form of Zombieism) and I could avoid the mould madness. Unfortunately the spray ran out after about two shots. So! Today we try again.

I dream of a flat with no allergies, and sunshine, and heating, and a nice view. It’d take all the good elements of our past three apartments and wrap them into one perfect package. The Dream Flat – which is actually a house, since I’m dreaming. A house with a yard and big trees nearby (but not so close as to threaten the structure).

Well, if we can just get rid of the mould our current home will be quite good. Zsolt needs to start spraying.

And that, Lulu, is all that is happening over here. Not much else to say. Zsolt and I are doing well; he’s working on his thesis and I am getting rest. Only six treatments left till chemotherapy is over, and if this Ottawa Hospital thing works out, only four more treatments till I go home.

Things are coming along. : ) See you soon.