Customer service

Hmm, I just called up Air Canada to arrange wheelchair assistance through the airport.

First, I must admit – it feels strange asking for a wheelchair. Wheelchairs should be for people who are really sick, or much older, or unable to WALK. I’m a 28 year old woman and I can walk . . . I just can’t walk for very long. My legs start feeling thick, I get tipsy (literally tipping over), and of course there’s fatigue.

I can understand someone’s surprise at my needing a wheelchair. But what I do not understand is being made to feel like an idiot for asking.

Calling the UK Air Canada customer service line today, I requested a wheelchair. The conversation went something like this (following the conversation about my reservation number, which was difficult in itself but quite possibly my fault):

Me: When I fly on the 14th, I’ll have just finished chemotherapy and will be really exhausted. Is there any kind of assistance I could have through the airport?

Lady: What kind of assistance do you want?

Me: Maybe a wheelchair or something?

Lady: Oh, wheelchair assistance.

I think the idea clicked into her head here. Before she wasn’t certain where to place me.

Lady: Is there any medical reason you need a wheelchair?

Me: I’ll have just finished chemotherapy and will be exhausted. I can walk a little, but not for long.

Lady: But is there any medical reason?

This is where I start to feel like an idiot.

Me: I’ll just have finished chemotherapy. I’ll be exhausted.

Lady: So you’ll need a wheelchair because you’ll be exhausted.

What is going on here? How many times do I need to say ‘chemotherapy’ and ‘exhausted’? Thinking about this now, I probably should have said: ‘I’m in the middle of chemotherapy’ – but totally forgot that fact during our conversation. But regardless, to have just finished chemotherapy and to be in the middle is essentially the same, because the effects are still felt a week or two (or more) after treatment.

Lady: I’ll put in a booking— sorry, a request for a wheelchair.

Me: (in my head: a request?) So I won’t know till I arrive if I have assistance?

Lady: That’s right.

At this point I want to cry, and don’t stand up for myself. Instead I say ‘fine’ because I feel like such an ass for even having asked.

Isn’t that crazy? Being challenged really throws me off; I totally lose my train of thought and can only say, ‘yeah, okay, fine’ like a stupid lemming. Mind you, if Zsolt is being challenged and asks for my help – no problem, I can tackle that issue. I’m a tough woman in other people’s battles. Not so great with my own.

Essentially, because I didn’t receive any sympathy from the Air Canada woman, I didn’t know how to handle myself. She treated my request like a form to be filled, which isn’t horrible, but at the same time – I’m not a form, I’m a person. My medical reason (apart from having been stated four times) goes beyond ‘exhaustion and chemotherapy’  – it extends to the fact that I need help, and I need it badly enough to ask.

Who asks for a wheelchair unless they need the bloody chair?

But she’ll put in a request.

Bah! It pissed me off enough to write, and maybe it’ll piss me off enough to call back later, when I feel less sorry for my passive self.

Though honestly, I had expected better.

Chemotherapy crazy

Yesterday was my third annual visit to the Christmas Art, Craft and Gift Fayre; I suppose it’s something I would normally have skipped (due to chemo) but a friend was showing work, and I really wanted to pick up a few of her matchbox masterpieces.


Ulrike and I arrived early to avoid the crowds; we hovered table to table, chatted up vendors, sampled truffles with oil,  and shopped – I bought three matchbox ladies from Barbro, who also had a stall showcasing her beautiful hand-woven, hand-painted cardboard baskets.

So that was a lovey morning, but by the time Ulrike and I had gone full circle and decided on a cup of tea, my legs felt like tree trunks and my head slightly fuzzy.

But sometimes a girl needs to socialize.

Mind you, I go crazy strange in the midst of exhaustion. Just this evening I was freaking out over nothing and Zsolt had to calm me down. It’s 100% a result of ‘too much activity’, which is tricky to manage during chemotherapy. This drug gives me the allusion of health . . . like, hey, I feel fine this morning so why don’t I do this, and this, and this, and this . . . except that come mid-afternoon I’m flat on my ass from a spinning head and can’t think straight.

It’s tricky, tricky stuff.

But nevertheless it was a lovely Sunday.

Another friend of mine who once had breast cancer advised that chemotherapy becomes more draining as time passes. She was concerned that flying to Canada would be too much. She’s probably right – I admit there is high risk of ‘Crazy Catherine, the Exhausted’ making a special appearance once home in Kanata.

So long as she doesn’t appear before, like when I’m talking to customs and trying to explain that hello/bonjour I’m Canadian, but I live in England, and yes I work there too, and no I don’t have anything to claim, and no I didn’t stop at duty free, and yes I’m home for a visit, and PLEASE stop asking questions because my parents are on the other side of that barrier and I’m dying to see them. At which point Crazy Catherine would take over and dive past the checkpoint, run across the luggage carousel, jump the security dogs, rip off her toque mid hot flash (revealing a suspiciously bald head) and probably end up tackled to the ground by that last fellow who checks your landing card and decides whether or not to search your bags.

Whew – sounds like an adventure I don’t want to have.

Therefore, the crazy will be saved for later.

December fourteenth

Alright! Good morning and good news: I am going to Canada!


Wooohooo! Happy dancing!

When I first mentioned the idea to Doctor Blonde at C3, she said to me: “Theoretically it’s possible, but you might have to work through red tape.”

Which is why it’s best to go to the top. When asking the lead oncologist he said, “I can’t see why that’d be a problem. I’ll send off a letter.”

Two weeks after that meeting I still didn’t have any news. First my file was lost (may still be lost) and then the doctor’s secretary kept telling me she ‘had the tape’ but hadn’t transcribed it. For a while I was stressing over how LONG everything takes. But, in a second meeting with the lead oncologist – let’s call him Dr Lead, because ‘lead oncologist’ is time consuming – he told me he’d sent an email, not a letter, and it should have been with the doctor in Canada two weeks ago.

Two weeks with no response? Fishy . . .

My mom sent her own email, to which the doctor in Canada, Dr Canada, responded with a phone call to the house. He told her that he hadn’t heard from England.

Ah! Okay. Now at this point I wonder – who was right – Dr Blond or Dr Lead? (Sometimes I wish I could use their real names, because these nick names are just silly!) Was this communication mix up ‘red tape’ or simply a misfired email? In either case, I’d say there’s been a handful of confusion . . . and yet, things are working.

I wrote an email to my UK oncologist, Dr Lead, asking him to please resend his original email to the address I provided again (hopefully correct this time). Wow, email is awesome. In other circumstances I would have waited till clinic or gone through his less than friendly secretary. But with a quick Google search of his name: BAM! Email acquired.

Monday morning he resent the introductory letter to Dr Canada and CCed me and my mother. The oncologist in Canada wrote back yesterday (Tuesday), saying he’s happy to have me and will start things rolling.

Not only are plans unfolding well, but now I’m in touch with an apparently excellent oncologist in Canada who, according to Rate-your-doctor, is kind and supportive. Furthermore, back when I started chemo it was my goal to fly home on the 14th of December. Now, even if I do have another setback, that goal will be met. All of this feels really good.

Next up, I’ll arrange things with Air Canada. Apparently they can help me through the airport, which is great because I have a feeling December 14th will be an exhausting day. Mind you, I’ve never been pushed in a wheelchair before; it’s another physical admission of illness, but geez – thinking about those long walks, I guess there’s little choice.

Less than three weeks and I’ll be with my family again. True it’s only for a visit, but it means the world to me nevertheless.   🙂 Isn’t good news fun?