Blog Silence Broken

Ah, radio silence . . . or rather, blog silence. For the past little while I’ve taken a break from the blog. Not because the blog was overwhelming, but because I was overwhelmed. However, we’ve just returned from a pause out west. This fishing trip had been planned ages ago, and so I decided not to cancel – in fact, it’s probably for the best that I didn’t since one thing after another was beginning to grind me down. We needed the break.

Here’s the real, real, real truth: I am not good at this. I’m just plain terrible at it. And of course it will all work out somehow, but I don’t know how people do it – and I’m not just talking about the cancer stuff, though it’s the biggest challenge, but the life stuff too. The highs and lows and curve balls and backtracks and ambitions and workloads. I’m just feeling kinda garbage with all of it. I guess that’s why spas were invented, and tea with friends, and duvets, and hugs.

So that’s all I’ll say about it. It was quite surprising and knocked me off guard as it happened. I’d quite like to stop that from happening again, if I can see the signs ahead of time.

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the moose and the bear

For the past several days Zsolt and I have been on a bear hunt. It started in Calgary and a drive with my friend out to this beautiful lake Kanananananananasksis. Or something like that. We’d packed our inflatable canoe with us, and were ready to sail except the winds and rain stopped us from heading out. So instead my lovely friend took us on a very slow drive through the back-country where we hoped to spot wildlife. It didn’t happen, however. Though apparently the next day they had to close that park because a grizzly was spotted eating a carcass.

From Calgary we took our rental car up to Banff. Banff is a National Park in Alberta, and it’s lovely J There’s a very touristy village with help wanted signs in all the windows – so if you are looking for a rocky mountain adventure, they have vacancies. However, no bears were spotted.

From Banff, we drove up to Jasper – a town embedded in my heart from trips as a child and a summer spent working for their tramway back in 2001. This is a far less commercial village, except for the souvenir shops all selling the exact same crap. We stayed here a couple days and drove from one waterfall to another, all the while going 30km/hour and looking for bears. Still nothing. But, we did find elk, thank goodness for that.

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pyramid lake

Here in Jasper I finally was able to canoe on Pyramid Lake, which had a been a day dream of mine way back in the chemoland days. Except instead of feeling that freedom and lightness I’d so craved, we were wrapped up in layers of warm clothing, praying it wouldn’t rain on us. There’s a strange niggle with this new diagnosis that I can’t shake off even in the best of moments. It’s just there looking at me. And whenever I look back at it, it sticks out its damn tongue.

To be honest, I’m a little exhausted lately – even on the trip I was exhausted – and it can largely be attributed to that tongue sticking-out, shoulder sitting, moment-spoiling little mental reminder I can’t seem to shake off. The way I see it, I’ve already lived 2 years with this bull shit cancer, and they were 2 of the sweetest years I could have asked for. Now that I know it’s there . . . why can I not get back to that sweet spot?

After Jasper – which involved a ridiculous canoe packing episode where we folded, jumped on, climbed over, sat upon and crushed our canoe into the suitcase – we went to Vancouver. In Vancouver we had one day of sunshine where Zsolt and I rode a two person bicycle. Now THAT was fun. 🙂 There’s no being distracted or getting teary when you’re trying to balance a bike between two people while watching the stunning scenery and taking in that ocean air. It still makes me smile.

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stanley park

Following Vancouver, we met up with my parents and little brother (the real purpose of this trip) to go fishing. Okay, I didn’t fish. I went to cafes and had cups of green teas. But the guys went fishing with HUGE results. So even if we never saw a bear, at least he did witness a dinosaur fish.

And now we are back and the real world continues. We’ll see how this goes, and how I manage. One day at a time, eh.  Plus, now that I’m back, I get to enjoy piecing together the prizes and construction for the book. Tomorrow I’ll meet with Ian to talk covers, and I’ve already got an ISBN sorted. When I think of my book – like really think of it and imagine it – it fills me up so much with that splash of goodness and lightness . . . kinda like biking around Stanley Park on a bicycle built for two.

So here we go – moving forward into autumn and the upcoming new year. We will see what happens next.

P.S. Wendy Nielson has featured me on her blog this month as she shares stories of those faced with breast cancer.  Check it out, she’s done a lovely job with our interview. Also, It’s now breast cancer awareness month, and that is fine if not also kinda exhausting. There are places where awareness is hugely needed, and there are places where we could move beyond awarenss. Cancer is a tricky little bugger whether it’s impacting children, women, men, pets or anything. It’s heartbreaking as any other life-threatening illness is heartbreaking. And breast cancer is not what you think it is . . . it’s not six months of treatment and life moving forward. Okay, life moves forward, but for 1 in 3 women like myself, it’s also cancer moving away from the breast area and into other vital organs of the body. There is no cure, and treatment options are shit. So if you want to support a cause this month for BC, that’s wonderful. Please check before you buy pink, so that the money you give (whether you decide to fund research, emotional support, awareness of ‘ahem’ metastic breast cancer, or even better finding cures) actually goes toward those goals and not just people’s piggy banks. That’s all I say here today. Thanks!

CBC radio, IV Vitamin C, and DR CANADA

It has been quite the week. If you’ve been following the Kickstarter for Adventures of Claire Never-Ending, than you know we might our goal for producing the novel. !!!!!!!! WOOHOO!

If I wasn’t so knackered at this very moment, I’d kiss you all.

It was such an incredible experience, and I want to thank everyone who pushed in and gave, and ordered, and shared, and supported. The campaign is still going, so I really hope to sell more copies over the next month. Are you part of a book club? Maybe you and your friends would be interested in the Claires 🙂

Betwen the tweeting and sharing and thanking, and getting blown-over by YOUR awesome support, I’ve been going to a place called the OICC in Ottawa. This is the Ottawa Integrative Cancer Centre. Twice a week I am receiving intravenous vitamin C treatments. This is meant to help control the cancer. It also works well when coupled with chemotherapy, but let’s not go there in this chat today. Basically the IVC is meant to encourage the cancer cells to breakdown. That’s putting it very simply. It’s not a cure, it’s a treatment. Heck, there is no cure for metastatic breast cancer, they are all treatments. But I want that shining golden prize of No Evidence of Disease (NED) to become mine. If you’ve read some of the comments in this blog, you’ll see it is possible. And even without NED – to keep things under control means good quality of life and no pain. Those are two beautiful concepts.

NOW. Two adventures I have to share with you in this post. First is the interview on CBC radio for All in a Day. (WOOOHOOO!) Second is my visit just this morning with Dr. Canada.

Just yesterday I was at the CBC building in downtown Ottawa. CBC is a national broadcaster and the standard of quality in Canadian media. So it’s huge to be there and was an honour. Hopping off the bus, I rock up to the big CBC location on Queen street. There’s a security guard and I check in. Then,  after a little while, a lady comes out to meet me. She has on a great red shirt, awesome sparkly shoes and such a cute hair cut. Unfortunately I cannot remember her name, but I do remember her excellent style.

Anyhow – we go into the ‘news area’. Surreal!! Think of any news show you’ve watched on television – that is what  this place is like, except for unexpected sensations like the softness of the carpet beneath my feet, the glow of florescent lights and that quiet hum of chatter. On one long wall there is a photo of the earth from space. In the centre of the room – hanging above all the low cubicles – is this massive, circular structure. It’s both a light fixture, art installation, and screen for all the stations. It’s a huge circle, and all around the outside are screens with different channels being played without any volume. Oh, and people look good. Everyone is dressed for success.

The show went really well. I’ll link in an audio clip to the picture below if you want to listen in. You should listen, it was a great experience. My parents and Zsolt both say it was great 🙂 Thumbs up for a encouraging family

Yay!

And then today was the oncology appointment. Dr. Canada was in a much better mood today. That was great. He also said this should be a time for joy. I’d rather focus on joy than dread – so yes, that was good. He also talked about sex, and he spoke quite frankly. Zoladex can lower the libido and dry up the lady parts. I’ve had problems with this before. So he was so great – even though Zsolt was squirming next to me with discomfort – basically saying something like, “this should be a time to focus on what you can do, not on what has been lost. So if you have trouble having an organism, try and focus on how much pleasure there comes from extra foreplay.” And he’s right. And I’m glad he opened the door for conversation. (Of course, he was referring in the bigger sense as well . . . such as having children, a certainty of a long life, etc. I think sharing this concept via intimacy was smart and frankly less emotional, cause you can laugh over sex, no? We did.) Also, one last thing: he wants me to go on a clinical trial that will start early 2014. In his words, he thinks the drug will be a “homerun!” So I’m all in favour of homeruns, even if I’m a terrible baseball player – I’m quite glad to hit a grandslam out of the park in the name of crushing cancer. I’ll just keep swinging till the job gets done, in my game there is no such thing as striking out!

So the language was much better today.

There is so much to say and write, but I won’t go into it all today. Sooner than later, I’ll write you a post about vitamin C. One very definite side effect: I get HYER right after treatment. It wears off. Too bad all treatments can’t work the same way – putting us in good moods.

OKAY That’s it.

Kickstarter is KICKING BUTT. With every single book sold, and more people who are going to read the Claires, it just gets fuzzier and fuzzier with warmth inside my heart. Thank you for your support. In return, I hope you like the novel.

Be well and have a lovely weekend 🙂

Catherine

Ready, Get Set . . .

All the beautiful cities in Europe seem to have carousels. At night, as you wander through the streets, stopping at the night markets and looking in store windows, there will always be that open square with the familiar crank-organ music and orange glow of the carousel: fairy lights, mirrors, swans, rabbits, ponies and golden poles upon which the animals slowly rise and fall as they parade in a circle.

Mechanical magic 🙂

That’s one of my stories: the watching of carousels at night. It’s not the only story, it’s just one of them. A small moment from my travelling that has stayed in my mind with a touch of nostalgia.

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Everyone has these sorts of stories. Small stories, big stories, long stories, epic stories. Stories of hard choices, stories of change, stories of love, stories of loss . . . we simply all have them. And so I think when we read novels and dip into someone else’s narrative (even a fictional narrative and a fictional, fantasy world), we’re able to get lost in those moments because there’s that deep familiarity. Who hasn’t had a moment of wonder, or sorrow, or laughter? Who hasn’t experienced a miracle? Who hasn’t slain a dragon?

Anyhow, I just love stories and could probably share forever these little snap-shots of sentiment and adventure.

On Monday, my novel, the  Adventures of Claire Never-Ending, will launch its Kickstarter campaign. I’m excited and I’m nervous and I’m hopeful. Also, oddly, I’m wondering what will come next? This project has been such a sanity-saver; it’s given me a purpose that hasn’t included illness (and will continue to do so as this project succeeds and I self-publish the book!). I am a writer, and I love to write. What comes next will be the sharing of more stories. Not my own (that’s what this blog is for), but rather the ones that belong to my imagination. Our imagination. Everyone’s imagination.

So tonight I am nervous, and excited, and nervous, and excited.

It’s coming. The start of this #BigProject is coming.

Stay tuned for Monday, September 9th when I announce the kick off of the Claires. Eep!

Get ready, get set, and . . .

(And if you’re afraid you won’t notice the Kickstarter launch, click here for an email notification. Also, fresh from the oven is my third except from the Adventures of Claire, read it while it’s hot!)