Eight!

Thank goodness this is getting easier. Yesterday, apart from a tryst with menopaus, went very well. Easy.


Quick aside: If you are unsure about whether to get a picc line, please let me state my opinion (this is in no way a professional opinion and yes, there are also some risks with a picc so please talk to your doctor before deciding): This picc line is amazing! The anxiety of searching for veins is gone, the anxiety of giving blood is gone, the anxiety of hospitalization followed by days worth of drips are gone. If you are having chemo, particularly any chemo known to irritate the veins like AC, and if you generally have small veins – I’d most certainly bring this subject up on your first consultation. Funny this idea is saved until the arm aches from a simple touch; in this case I think preventative medicine is the better approach (i.e. picc line), though of course more expensive to the health care system. But so is chemotherapy, so why not go ahead with what’s best for you? The picc line makes like easier. Show up, plug in, drip, unplug.

Yesterday morning I was punching things out once again, but it wasn’t having the same effect. Okay, yes, I’d feel better while punching, but afterwards the blanket of dread would fall back down. This anxiety lasted all the way into the chemo ward. I wanted to cry, to run away, to panic.

Behind the reception desk was the curly hair lead nurse. “There’s a bit of a wait, Catherine.” They know my name . . . “We’re about 45 minutes behind, so you can wait here or go off for a while.”

Given the choice of waiting in a chemo ward or going somewhere else, I will always choose to ‘go somewhere else’. We went back to the car and ate orange slices. And while I was waiting in the car, still full of my dread, I thought ‘this is the perfect time to cry’ so I spoke with Zsolt about all those sentimental things that I miss (e.g. Balaton bike rides and buying giant watermelons from the market) and let the tears work their way out.

Now I’m not saying this to complain, or because crying was so difficult – exactly opposite  — crying was easy, it was exactly what I needed to do. My emotions didn’t have a ‘reason’ for overspilling, and while poor Zsolt kept asking, “why are you so sad?”, I had no particular response. All I needed to do was cry. Sometimes the best thing a man can do is rub his wife’s back while she cries. Nothing needs to be fixed.

And after the crying I was another woman. The dread was lightened, and with the addition of sucking on orange slices for distraction, it eventually disappeared. I returned to the ward ready for chemotherapy.

In went the dopy drug and anti sickness; down went my head onto the pillow. I lay there for thirty minutes and thought ‘this isn’t so different from my acupuncture’.  Qing, my acupuncturist, often leaves me to rest while the heat lamp works it’s beautiful magic. So I imagined I was on her table with the blankets and the heat, and I did my best to meditate. Somehow that meditation turned into mentally dancing at the club with my friend Catherine – complete with disco ball and smoke machine, but the nurses were playing radio 2 in the background so I blame it on the pop music.

Zsolt sat close by reading Love in the time of cholera (but in Hungarian). And we waited.

Afterwards – drip of saline for five minutes, change of wrapping for my picc, then unplugging and done! Like I said, it was easy.

At this point I think it’s more the aftermath of chemo rather than the chemo itself that needs to be handled. Exhaustion comes and goes, along with my crazy emotions, and there are things to think about like food and cleaning and work – but I’m learning. I miss work if I’m too exhausted, I don’t cook unless necessary, and any cleaning only takes place when my body feels strong enough to manage.

Oh! The appointment with the doctor. Well, guess who is on vacation this week? 🙂 Fair enough, everyone deserve a vacation. Instead of seeing the lead oncologist I visted with another doctor. She’s quite nice, very smiley and wears cool black boots. The curl in her hair often fights back against the ponytails she pushes it into. Let’s call her Doctor Boots.

Not the lead oncologist, but still a very interesting visit. I asked her about my Christmas question and she said of course, they will always recommend the full treatment, but people do stop early and – very interestingly – she used to work at Portsmouth Hospital, and over there someone with my exact same situation would have been given about three weeks less treatment.

But,  as to which treatment is better, she couldn’t say. Apparently each hospital follows whatever approach they think best – but there aren’t any studies comparing the results of Portmouth Hospital’s shorter course of chemotherapy to Southampton Hospital’s slightly longer plan.  She can’t say which is better.

Bottom line once again: Do what you feel is best, because we can’t decide for you.

Well, I wish someone would! Doctors must be tied up in all kinds of legal obligations. They probably need to memorize a booklet called, “how not to be sued”.

Anyhow, no matter. It was an interesting conversation that helped me gain another perspective. Next week when I finally talk with the head fellow, I’ll have better questions to ask.

So there you have it. That was eight. Yay!

Halloween pumpkin

Boo!

Zsolt and I have decided to celebrate Halloween. I know that back home ‘deciding’ to celebrate Halloween is as inevitable as deciding to rake the lawn, but here in England it is 100% optional.


It’s been years since I’ve dressed up for a party, and since we’re not going to a party (too many potential germs!) – it may be several more. But there are other ways to get into the Halloween spirit. First and foremost: carve a pumpkin.

Today after work we dropped into the green grocer’s on Portswood and selected a pumpkin. My experience vetoed Zsolt’s desire for a tiny pumpkin because – frankly – it’s really hard to carve a face onto a tiny surface.  Now our pumpkin (about 1 foot tall, and somewhat narrow) is sitting by the door waiting for Sunday. Though by Canadian standards this is a small pumpkin. Back home we would go to the farm where there’d be a moutain of pumpkins – massive pumpkins, big as a man’s torso. We’d buy a few, because why not? But our English pumpkin is perfect for our English apartment.  Plus, it’s Zsolt’s first time; don’t want to overwhelm the man.

Tomorrow is blood. Friday is chemo. Saturday is rest. Sunday is pumpkin. It’ll be all the activity I can handle, made easier by Zsolt deseeding and carving while I sit by and nod, occasionally napping. After we carve the pumpkin (once it’s dark and spooky outside) we’ll watch a Halloween film. Trouble here is that I have zero tolerance for scary. So, as to what Halloween film we’ll watch I’m not sure. Maybe the Rocky Horror Picture show? Although it looks several kinds of crazy. Is there a Halloween film that leaves you feeling warm and fuzzy (instead of jumpy and paranoid)?

Or we could watch Love Actually again, for the thousandth time. 🙂

Anyhow, it’ll be fun. Why not have a bit of fun?

Killing with Chemo

How are things going? They’re going well.

This past chemo was the easiest session thus far. Why? Well, Zsolt and I have a few theories.

treatment seven

Theory one: Could they have reduced my dose? The doctor had mentioned something two weeks ago about a possible reduction in my dosage. I have mixed feelings on this, but better reduced dosage for one week than to get behind another treatment. Maybe this will give my blood the chance it needs to recover – even if it’s only a slight recovery. Anyhow, that is one theory. Next time we see the doctor we’ll ask if they changed something in the chemo plan.

Theory two: AC is wearing off. My God, AC chemotherapy is difficult. Not impossible – I’d like to stress this, it is not impossible to weather, but yes, it is difficult. A lot of rest is required.

This past treatment I was able to sit up on Friday and watch a little Channel 4od. Yesterday I went for a walk that lasted a good twenty minutes. Today we tidied the flat and did some groceries. I still get those waves of exhaustion and need to take breaks – after Saturday’s walk I crashed onto the bed. BUT just being able to do those things is such a drastic change. Could it be that the previous treatment is finally leaving my body?

Theory Three: Have I finally accepted my situation? Well, actually – will I ever accept my situation is a better question, though last Friday was a good switch in my mind. Thursday I’d gone in for my blood and felt that nervous tension, that same resentment for my situation. Then Friday morning Zsolt talked to me about how much he worries. Poor guy,  he started researching my chemo treatments, which led to him reading about stage 3 breast cancer, which got him onto reoccurrence topics and so on. This is why I avoid combining Google and key words searches for ‘breast cancer’. It’s just fucking depressing. Anyhow, he came to me with these worries and for a change it was my turn to comfort him.

“We’re going to be fine. We are fighting this cancer. We are doing everything we can. We will get through this.”

We are fighting. Chemotherapy is fighting. The idea clicked into my head, and that afternoon before leaving for treatment I didn’t punch out my fear of chemo; instead I punched to kill the fucking-fucking-fucking cancer that may still be in my body. It has no right to be here, and going to chemo is part of killing that cancer. And all throughout my treatment (walking into the ward, sitting in the chair, getting the dopy drug, waiting for the drips) I thought: I am killing this cancer. We are killing every last bit of this cancer.

Best treatment yet.

So whatever the reason. Reduced dosage, recovery from AC, acceptance of this method – whatever the reason, it was easier this time. No nausea and less exhaustion. Let’s hope it stays easier.

I can’t promise to always be friends with chemotherapy; it’s a process that is draining and difficult. But for Zsolt and for myself – I will use it as my weapon.

I have to get better. There’s no choice in this matter. I have to get better. 100% must.

So we fight, fight, and keep on fighting. Chemo is my weapon.