It’s Cancerous: A Love Story

I wrote this ‘game’ in the summer, and intended it for #metastatic breast cancer day (i.e. stage 4) during this month for #breastcancer awareness. It’s still in its rough form, but I’ll share it because that was why I wrote it, and believe me it wasn’t so easy to write. This isn’t everyone’s experience, and to be honest I have purposefully given it a vague ending – to be interpreted as you like. But it springs from very real frustrations. The options are not easy, and not enough.

So, play if you dare.

Click here: It’s Cancerous: A Love Story

 

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In which I lose my mind, slightly

Hello hello hello

and

hello!

Okay, enough of that. I think I’ll do that thing where I blog and pretend no one is watching. Dance like no one’s watching – except, I’ll write. And this isn’t on some big stage. And most importantly, I’m not wearing any leotard, ballet shoes, or waving any jazz hands.

Man, work has been interesting. Like, 9-5 and beyond interesting. It really hasn’t stopped since I began. Today I made a list of all the things I’d like to do – for only one part of my job, not even the other part – and there were 80 things on that list! EIGHTY. And they’re not like ‘sharpen all the pencils in my pencil holder’ they are complex-to-organize pieces of business.

But hey, I’ve made a list. Next comes the question: which of these are going to help me reach my goals best, and also fastest? From there, I’ll prioritize. Along with: what am I am actually capable of doing at this moment?! And what needs to be done first, so that other things can be done afterwards?

You know what full time employment feels like? (She asks herself, because she’s meant to be writing as if no one is reading. Damn.) It feels like an adventure game. Monkey Island, with fewer monkeys, or pirates, or insult sword fights. If I want to accomplish goal A, I need to have resource B and C in my inventory – but I can only get those resources by solving puzzle Q. etc. So yes, apparently my love of adventure gaming has prepared me for being a grown up. Who would have known?

Anyhow, I love my new job. I love, love, love it. You know what I do? I do this! And I love it!

But you know what I haven’t’ loved? I haven’t loved the surging pressure headache I’ve been getting. And I haven’t loved the wheezing in my chest – caused by elements that I really don’t love. And I haven’t loved that the boxes in my apartment STILL haven’t been unpacked despite my having moved in a month ago. AND, since I’m writing to myself and am allowed to complain like no one is listening, I DON’T love the FUCKING cancer that is trying to FUCK UP my life.

Ahem.

Excuse me.

But it’s true. I am both happy and frustrated at once. When I’m at work, it all goes away. When I’m at home, and not watching the Amazing Race with my husband, I focus far too carefully upon the wheeze that has developed in my chest.  Along with the cancer cells, I think stress has simply gotten to me. And while I fully realize there are means to relieve these pressures, I can’t seem to . . . get there. You know?

Like, I should meditate. I should exercise. I should do yoga. I should go for a swim. I should eat well. I should take vitamins. I should call the hospital. I should call my health care insurance. I should brush my teeth more often. I should clean the kitchen counter. I should unpack those boxes. I should maybe start chemo. I should finish writing my next book. I should edit that podcast. I should write this article. I should finish a blog post. And oh yes, I should do the things that really, truly make me happy.

Or I could just go to bed.

Often, at this point, bed feels like the best option. Except I don’t even really love my bedroom, because we moved into a really weird, though also clean, apartment, and I’m not sure if I like it yet.

As I said, complain like no one is watching. Sorry.

Now, it’s not always like this. I do all those things on the list above quite happily (except for anything hospital related, because that does not make me happy). But I haven’t written a blog post in a long time. Partly because I’ve been tired. But also largely because I’ve started a new job, and I still don’t’ know how to navigate between my voice, my job, and my private but also public health and life story. When it comes to work, I never want to drag in the heath realities. So I don’t update my blog, because I don’t want folks noticing what’s going on when I’m not at my desk hustling to make an awesome book club.

What I probably really need to realize is that no one is watching. Like really, they’re not. And if they are, they’re not really because we all have lives that demand attention. But still, it’s been a weird challenge for me. I’ve never felt the need to censor myself before, except when I worked for the library. And frankly, that was hard even then. I feel it even more so now.

But I like writing these things out. If I’m ever going to move away from these stress-pressure reactions, it’s definitely at least in part going to be through writing them out.

So there it is. My complaining blog post. I’m a little happy, a little sad, and a little tired. I’m also really excited, totally in love, and scared out of my mind – but hey, why can’t we be many things at once?

And now I will revert to my default coping method.

Time for bed.

Goodnight.

Blogging Personality

So I saw this personality test on the Vlog, and thought I’d like to give it a try. But rather than writing 3500 random phrases, I just pulled from my blog posts and inputted it. Then it analyzed the text and gave me my personality results. Not bad, I think! I’ll take that 🙂 Here’s a link if you want to try it yourself.

This is what IBM had to say about my blogging personality. If you write or blog, maybe give it a try as well? It could be a fun little game to see what you are expression through your words. (as a computer program would interpret)

 

You are social.

You are empathetic: you feel what others feel and are compassionate towards them. You are confident: you are hard to embarrass and are self-confident most of the time. And you are outgoing: you make friends easily and feel comfortable around other people.

You are motivated to seek out experiences that provide a strong feeling of efficiency.

You are relatively unconcerned with achieving success: you make decisions with little regard for how they show off your talents. You consider helping others to guide a large part of what you do: you think it is important to take care of the people around you.

 

 

Also, I had some news the other day. One step at a time and all of that. It could be worse, of course. Though knowing that doesn’t always make life super fun to manage, does it?