Happy Canadian Thanksgiving!

This weekend is thanksgiving in Canada, and I’m writing this post today because I’m so incredibly glad for the occasion. It’s a little bit ridiculous to be so glad for thanksgiving, particularly since my family long-ago gave up on the turkey and cranberries and mashed potatoes in exchange for Indian food . . . but the weather is just so lovely, and it’s always a pleasure to get all together. I can’t help feeling good about giving thanks.

YEAHA friend of mine recently said to me that it’s great to be a big dreamer, but even better to be a big DOER. And she’s so totally right. I love to imagine sunshiny weather when it’s raining, but it’s even better to actually get outside when the sun does shine (I say while looking at the window and typing on on computer from inside the bedroom – okay, from between my bed covers.)

So I dreamed about self-publishing my book, and now it’s really going to happen. (I wonder if I dream of it getting accepted by some huge publisher, if that would happen as well – I guess the lesson here is to actively make these things happen.) I dared to ask people to help, which is actually rather intimidating – so I don’t know how Terri of A Fresh Chapter manages it time and again.

BUT you know what?  Last year at the Mirror Ball in Toronto that raises funds for Look Good Feel Better and Facing Cancer, the hostess said something about asking for money that was so insightful and so valid, I still remember it. Tracy Moore stood up there on the stage and said that people suggest it must be hard for her and Sherry to go about asking for money during the night. But no, she asserted, it wasn’t hard to ask for money because it was going to a worthwhile cause – helping women navigate the emotional hurdles of cancer. It’s not hard to ask because the intention is good.

So that’s something I’ve kept in mind. Now, with the kickstarter I feel much less entitled to ask because while the intention is good, it’s impact is also small. There’s just me and my book. Though I really hope it resonates with those who read it, and that is how the impact can become larger – hopefully!

But anyhow, all that aside, today I’m thankful for being a DOER. It’s not easy, but it’s happening.

I’m also thankful to feel so much love and support. It is amazing. And I really mean it, too. It was amazing (Causing great surprise or wonder; astonishing) to receive such an outpour of support. Now we’re putting the book together bit-by-bit. I ordered more material for the tea towels yesterday, and am receiving edits, and have the cover with Ian, and am trying to learn more about ebooks (with some advice from Opal Carew). It’s overwhelming, it takes all kinds of time, and it’s fantastic. I’m grateful so many people gave their support to this happening.

* I am grateful for my breath. Air comes in and out of my lungs, and I love that sensation. Ever since the doctor said “there are spots” I have had trouble in my chest. Trouble like pain, wheezing, etc. Whether it is psychosomatic or cancer-related, I don’t know exactly. All I know is that it is uncomfortable, and comes on and off. The past week or so I’ve had some strong wheezing, and living with that sensation is truly challenging. Today the wheezing has backed off, and I am grateful for the ability to breathe in and out without that internal crinkling sensation. My mom gave me some drops, and I did some steaming stuff – honestly, I don’t know what helps, but so long as something helps, I am so incredibly grateful.

I am grateful for the tears, because they are easier than the stress.

I am grateful for butter chicken, which I’ll be licking of my  plate in a few hours.

I am grateful for family and friends and love.

I am grateful for an apartment that has been repaired. The handyman came by yesterday (and is here again today) and pulled out all our cupboards. Oh my goodness! You should have SEEN the MASSIVE holes behind our cupboards. So  of course the neighbours’ smoke was pouring into our apartment.  I am not grateful of an inconsiderate neighbour who won’t take his smoking outside. But if I talk too much about that my wheeze will return. Let’s just say that the holes are fixed and I am glad.

And last but not least, I’m grateful for this blog, for the leaves falling from trees, for my husband’s beautiful smile, for the tea we drink each morning, for the sunshine through the window, for hot showers, for friends and family, for the cottage we’ll escape to later this upcoming week, for the support I’ve received in all kinds of ways, for chocolate chip cookies made without much sugar (little bit of coconut sugar) and no grains or gluten . . .

You know what else, I’m grateful for feeling happy right now. It doesn’t always happen, but right now I am – Thank God – feeling good.

So Happy Thanksgiving! I hope you have a wonderful day whether or not  you are celebrating the occasion.

~Catherine

P.S. My “Catherine Brunelle Writes” facebook page has a very small number of likes. It was pointed out that maybe I should give it more attention, so if you are in the mood for a little “liking” (and want to follow writing adventures with pictures, thoughts, etc), please do click here and like the page. Thanks!

Am I not paying enough attention to cancer?

Okay, so yesterday I spent my entire Friday in front of the computer webcam making a video. It was a heck of a lot of work for something that is totally basic – but there was the editing, the lack of a script (my dad taught me in elementary school to never public speak using a written script . . . so instead we’d write points and I’d talk around those ideas . . . and then in high school during my debating club days, it was the same situation. So yesterday, I figured I’d ‘go natural’ and just talk. Four hours later . . .), and then of course the editing of my rambles. But it was SO worth it. The final result is open and honest, even if not fancy. I reckon open and honest come first when asking people to fund your project.

Okay, so the reality is that in preparing for this kickstarter campaign, even though I’m a wee bit overwhelmed with its growing requirement of commitments and work, it’s freaking FUN.

I’m having fun.

And it was realizing that last week that scared the crap outta me.

During an interview with a fabulous local blog, Apt613, on the kickstarter book project, I was asked about how I could jump into such a big project with the news I’d just received? You know, where do I find the energy? And my only answer for that was that this is my energy because it’s my joy. I’m also kinda worried about what happens next once this goal is realized (with your help!). Where does that energy go?

And then the other day a neighbour said to my mom that she’d “heard your daughter isn’t doing well.” Which is fine, and so understandable. Except that I am doing well. For someone in my situation, I’m able to walk, there’s been no chemo as of yet, I have my hair, my energy is good, I can breathe . . . I am doing very well.

Screenshot!

Screenshot!

But having had these questions, they must have lingered in the back of my mind or something, because the other day I had a big pause moment where a feeling of panic suddenly overcame me:

  • Am I in denial?
  • Am I not thinking about the cancer often enough?
  • Is it going to blindside me again, because I’m not paying enough attention?
  • How often should this be on my mind, should I be scared? Like, right now and today, should I have fear?

Because when I work on my book publishing goal, those feelings . . . that fear . . . it kinda just turns off. Is it a good thing? Or am I being naive?

Last week I had a coaching session with this lovely lady named Camille Boivin. She’s from Ottawa and I work with her for her company Sister Leadership. Anyhow, Cam is full of generosity and a desire to help people connect with their emotions and ambitions. And when the cancer came back, we started working together not as client and writer, but as coach and person-who-needs-some-emotional-work-done. (That’s me.)

So last week in our session I was talking about this anger I’d been feeling. And somehow that discussion of anger turned toward a discussion of sadness. Because along with that anger, I was feeling deeply sad (and still do sometimes, like when I realized last week I wasn’t feeling shitty enough). So we honed in on that sadness. Cam asked me to look back over my life when I’ve felt similar feelings of sadness.

*In this case of metastatic cancer, I’d say the sadness isn’t just about the disease, but more so about potentially leaving my husband behind and hurting my family and friends. The idea is completely crushing.

So I began thinking back in time when I’d felt feelings of loss and sadness. School graduations. Ends of summers working abroad. Moving to a new country. Saying goodbye at airport. Leaving a beloved workplace. Losing my golden retriever . . .

And then Cam asked me this: “If you could go back with what you know now, what would you tell yourself in those moments of sadness?”

And I said to her, “that even though it hurt, good things were coming . . . and love doesn’t stop just because you are separated. The love keeps on going.”

Because from school graduations came new schools, clubs and friends (and I just attended the wedding of my first friend ever – we may not be together always, but the love stays); end of the summer working abroad brought me back home where I found a bookstore job and made more friends there (though I’ll always love the Jasper Kids from 2002);  In moving to a new country I left my family and best friend, but learned oh so much about being independent and made such incredible friendships with people who I still carry in my heart even after returning to Canada; saying goodbye at the airport always means I get to say hello to someone on the other end; leaving my work gave time and space for me to become a writer; and losing my dog – well, that still hurts but the love doesn’t fade. Not one bit.

So I guess if I could go back to those moments when I felt that sadness, I would just tell myself that I’m not leaving the love and by moving forward more good things are going to happen.

Since that conversation I’ve felt a lot less angry, a lot less sad. I’ve been to doctor appointments, blood draws, chemo wards, searching for clinical studies, urine samples, meds from the pharmacy, acupuncture . . . but I’m not grieving the Catherine of four months ago who was almost certain she was cancer-free.

Today I am here, and I’d rather run forward toward whatever good can be created. This kickstarter is part of that. Being proactive in my health is part of that. Not being sad has been a result of those reflections.

Is it normal? Will it stay forever? Is it denial? Is it really because I haven’t met with Dr. Canada? I just don’t know.

How often should I think of the cancer, and will it do me any good? Again, I just don’t know.

It’s so strange to wonder if I’m not fearful enough. I also realize I’m new to metastatic cancer, and therefore incredibly naive to its realities. Is there a right way to cope? I would actually really appreciate hearing other people’s experiences with this fear vs. life thing – is there any use in holding fear close? I’ve been happier this past week than I’ve been for a while, and that is quite precious in these times.

Anyhow. That’s all I have to say about that.  Now, back to work!

~Catherine

P.S.

To not overwhelm you with blog posts, I’m going to slip in the second excerpt from The Adventures of Claire Never-Ending. Meet Elizabeth (Amelia’s mother) and read her story here! If you want to sign up for an email notification when the project launches, you can do so here.

liz

It’s my Birthday!

Guess what? Today I’m officially 31 – a word to my thirties: I’m here, I’m in you, and I’m not letting go!

make a wishYesterday was something. Zsolt and I had a follow up appointment with Dr Canada at the hospital, so that pretty much consumed my thoughts. We were going to learn about tumour markers and hear what could be seen on the lung x-ray.

So, we get to the hospital and are pretty much immediately taken into a consultation room. The nurse says she’ll pass me a slip after the talk with Dr Canada so I can book my follow up appointment. And I was like, “Follow up appointment?” in my head. Not aloud. Follow up appointments are never quite the words you want to hear in a consultation room, particularly after the life-shaking news I received last time.

Anyhow, she left and Zsolt and I waited. And waited. And waited. Part of me had been calm going in there, but as the waiting continued another part of me started kicking up and wanted to just leave.

“Let’s leave,” I said to Zsolt, pretending to be joking.

He pretended to laugh.

For some reason I decided to dress nicely for this appointment. Yesterday I was in my high-waist blue skirt, stripped blue t-shirt, and blue canvas shoes. Zsolt was in his red t-shirt, blue jeans and white shoes. Together we looked like the American flag, which I guess was appropriate considering it was July 4th.

Anyhow, just as I’m sliding down in my chair onto the consultation room floor with all the nerves, in walks Dr Canada.

He’s smiling, he says hello, he gives me a hug. (After I sit back up.)

And all along in the back of my mind, as we exchange words and he tells me a little bit about the anxiety he realizes I must be feeling, I just want to know about the tumour markers. Finally he lets us know that the markers looked ‘normal’, and the markers specific to my situation looks rather ‘normal’. And that was great to hear.

The X-ray didn’t show the spots, which probably means they are too small. This, he said, was a bit of a disappointment because now I’ll need to be bounced around in my referrals before we can find someone to actually biopsy the little things. Therefore, that means I need to keep waiting.

Fucking torturous.

And then we talked about possibilities and options and treatments and scary stuff. They may be benign spots that resulted from a lung infection some people in this area can get, so there’s that as a bit of hope. The biopsy will really reveal all.

Some scary things were also said yesterday. Things I already knew, but I guess you never want to hear coming out of a doctor’s mouth. Stuff like breast metastatic cancer isn’t curable (garbage!). Stuff like woman do die from this. Stuff like some women live one or two years while others live many more.

Stuff I don’t want to battle, take on, challenge, fight, deal with, or acknowledge. Stuff I’d rather not have to consider.  (And I think it’s total crap that we are slapped in the face with this ‘no cure’ crap! Science – GET ON THIS ALREADY. Oh, yes, you are. Okay – GO FASTER.)

He also said that if it is metastatic I can basically forget about carrying a child. And if it’s estrogen receptive, I should consider removing my ovaries.

However, we have a bit more hope after that appointment, and small in good no matter what. Small is good. Not being cancer is the best. Let’s shoot for the best!!!

On another note, a happier note, last night I attended a bachelorette party. This is my first every bachelorette party – I didn’t even have a bachelorette party when marrying the Zsoltster.

Dress code said black dresses. Hmm. I paired a black skirt with a black tank top, and said, “good enough!” Can you believe I own no little black ‘going to a club’ dress? I guess I can believe it – black isn’t my best shade.

The party was for an old friend I’ve known since almost always. (She was an excitable, imaginative and trouble-making kid, who I got to see grow up into a beautiful, hilarious, and compassionate woman. You would like her very much.) She and I grew up on the same street, and while we weren’t tied at the hip or anything, it’s been good to have her there to talk to when it’s needed, and I’m sure its visa versa. I’m so entirely happy for her to be marrying such a lovely guy, and think there’s a lifetime of laughter and fun ahead for that couple.

Now, I’m not a natural party girl – I’m kinda the anti-party girl, particularly as of late – so I showed up with my bottle off fizzy water and was quiet in my corner as stories were passed around about the bride-to-be, and quizzes were taken, beads won, salads and Mexican food eaten. I met new people and caught up with friends from high school. 🙂

It was one of those nights when I could forget about the hard stuff for just a little while, just long enough to laugh and think of how wonderful the world can be for us. So I’m very glad to have gone, very glad to have been there for that moment, and kinda sorry I wasn’t in the mood to dance on any tables – though that really rarely (if ever?) happens anyhow.

Now here is a small miracle I’d love to see happen:  Dr Canada wants to look at my previous post-original-diagnosis CT scan from three years ago. If he sees spots on that scan, then I’m okay because this is probably just a result of that stupid infection people can get. If he doesn’t, then I need to have a biopsy to see what is going on – and that has a long wait time attached to it, plus scary possible implications. I wasn’t sure whether or not to talk about this, but I’ve decided to do so since your good vibes worked last time, so I’m hoping they work again. Please do send some my way, if that’s okay. And in the meanwhile I’m hoping, praying and writing for good results in all areas.

Next week I drop off that CT scan.

Week after I have a bone scan.

We want spots on the original CT scan, and a clear bone scan. That two things would be good. Good would be GOOD.

And, it’d be an awesome birthday present too.