So, upon my request, my oncology and CT appointments are being moved.
It’s funny, a lot of this business with cancer really does take place in the mind. I happen to be in the very fortunate circumstance where there isn’t any pain. Many others don’t have that luxury, but I do and I am thankful for this moment. The pain in my chest has quieted down, and I only get that wheeze when my anxiety kicks in. Actually, as I’ve said before, different moods seem to trigger different reactions in my chest.
Anyhow, all that to say, the appointments are being moved. Some may say it’s risky to move the scan back five weeks. But there are always risks in this “game” of health. There’s the risk of over-treating, the risk of under-treating, the risk of too much radiation, the risk of not knowing what is happening, the risk of knowing too much, the risk of knowing too little.
Or I guess you could say, they are the choices. There are a lot of choices, and yet sometime it also feels like I have no choice at all. This shit is happening and I am dealing.
I have chosen to move my CT scan by five weeks so that for just a little window of time, it can feel like life isn’t all about cancer. This isn’t a cowardly decision, it’s a brave one. That’s how I see it. What is life all about anyhow? Is it about the terror of scans and the waiting for results? Fuck no. Those are not the benchmarks I want to live by. I get the need to be aware and be strategic and yet I need my dose of “normal” too.
Anyhow. Don’t get me started 🙂
The scans are postponed and I’m happy about it (and apparently defensive). They aren’t gone, but they will keep. And then, once they arrive, life will reboot and we’ll start again from scratch. That’s what it feels like after each of these tests, it feels like starting again from scratch – for better or for worse and no matter what the news, I need to recover and rebuild.
In the meanwhile, I’m dreaming again. It’s a possibly bad habit that I am associating my happiness with my busy project creation, but ever since last year I’ve been compelled to go-go-go.
There is the book, my Literary Love, which I will leave alone for a little while apart from a book signing in June.
And I’m also working on a project to help local writers find one another more easily within Ottawa. Kevin and I are creating a podcast to go with the #OttawaWrites venture, and that is rather exciting. More news to come.
Zsolt and I maintain our big dream of living in both countries, though I’m honestly scared sometimes we won’t get to realize those moments if we keep putting them off. Next year is our ten year anniversary and Zsolt wants us to go back to Nice where we met. 🙂 He is awfully romantic. And I just want to make it there. I want to make it there, and then I want to make it much, much further for years upon years of growing businesses, travelling to Hungary and back, visiting new places, writing in this blog and so much more. Maybe we’ll get a dog?
I’d love to start planning writing retreats for writers, bloggers, authors, etc. Can you imagine going somewhere beautiful and being encouraged to write, write, write while also having a group of like-minded folks to bounce off ideas? A special time made just for you and your passion? That’s what I’d like to do, and I have absolutely no idea how to start that rolling!
I’d like to also maybe one day set up a writer’s house – which would work just like those shared office hubs – where people could book time to come and work/write and have resources for editing, designing, printing etc. And this place would be in a gorgeous location that feels like a retreat even though it’s really connected to town. 🙂 I don’t know. I just feel like creating and entrepreneuring 🙂
Plus, I want to give myself time for my own personal creativity – whatever that may be. My next project may not be a book, or maybe it will be . . . I don’t know until I find the quiet space in which to experiment. I have this mental image of throwing spaghatti against the wall till something sticks. That’s kinda the way it goes with me and my mind.
So many ideas.
So many ambitions.
There is so much life to live in between the scans. Putting them off five weeks is a good compromise, I guess. Ideally I’d run away from everything and go live on a beach with Zsolt somewhere. But since isn’t an option . . . five extra weeks, and then we’ll start again.
Holy Moly, look what just landed in my inbox today (1 day after the post). Did some sophisticated cookies or internet spiders do this? I swear I didn’t google Nice, France, I only wrote it in the blog. I’m quitely freaking out now as I read way too much into this as a sign . . .when it could simply be very strategic marketing. How is a girl meant to distinguish a sign from the universe from google ninja internet crawlers?! Now I’m all “maybe we should jump on a plane now while we can!” vs “be practical, you are saving for big dreams!” Air Canada, you done confused me. Probably best to ignore the coincidence since it’s most likely google ninja crawlers. . . I hope, hope, hope.
9 thoughts on “Life between the scans”
It is so important to give yourself a quality of life… Giving yourself space and continuing your dreams is so important… What ever the results in 5 weeks they will be the same but you will have enjoyed that “normal” time ….
Sometime, we just need a break. After my lumpectomy, my oncologist wanted me to immediately begging chemotherapy, I chose an invitation from my two daughters to take a 7-day trip to the Dominican Republic.. When I returned, chemotherapy seemed a little less threatening. A week of spending quality time with myself and those who loved me unconditionally was the treatment I was most in need of. Thank you for sharing.
I admire you for following your dreams so passionately. And I love your idea about those retreats. It’s so important to do things your way, so yes, I agree about the five weeks being a good compromise. xx
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Excellent post. Yes, cancer is all about the mind, isn’t it? Good for you for choosing how your life is playing out and deciding when to have those scans. I think you should follow your dreams and start blogging/writing get-aways.
You’ve clearly considered your options carefully and then chosen what only you can know is best for you. I think that’s what we always need to try to do when making our decisions about medical care. I love your ideas about writer retreats and a writers house.
Weighing in super late just to say – sign me up for your Nordic writers’ retreat!
🙂 I think I might put some feelers out there – see what is possible.