A Love Between Two Aliens

Last night Zsolt and I were laying in bed and talking. This is what we do, and I reckon it’s what many couples do. I was asking him if he thought we’ve always known one another and could sense each other out across the world before we even met.

He figured that was unlikely. Though he did think it was a miracle we met at all, and quite a remarkable thing if you consider the infinite number of aspects that had to line up for us to meet in that hostel in Nice, and at that time in our lives. The odds are basically even higher than winning the lottery.

I said true enough. It was a miracle that we met, and that we’re together. And I also said that I reckon we did know each other in some sense, even if it wasn’t a past life. Right from the start our energies synced up and I knew he was for me.

He said that maybe we were synced somehow.

You and MeAnd then I came up with the idea that maybe we’re just aliens passing through, and we’re travelling together across the universe – since we enjoy travelling so much – and living a variety of lives and existences as we get to know a place.

He said if that was the case, then we better enjoy our time on earth since we’ll not be stopping here again.

I agreed. I love earth, but if the universe is on offer, how can a alien/person/soul not want to go out there and explore it?

I asked him where he wants to visit next.

He said he didn’t know, but it will be good.

It will be good, I agreed.

Then we talked about Earth, because we’re here now and enjoying ourselves. The people are nice and the scenery is beautiful. Except, of course, not everyone is nice and not everything is beautiful. Certainly not everything is easy. But we like it anyhow. It’s a miracle that it exists, just like it’s a miracle that we are together. And I kinda enjoyed thinking of myself as an alien who is living in a body and passing through.

So, even if he might not believe in past lives, and I might not believe in coincidences, we both certainly believe in miracles. And aliens.

Every day with my husband is a miracle. I couldn’t get more lucky than having him as a companion for travelling the universe, and for talking in bed late at night. So, that is that and I’m very glad for it.

To Zsolt on Valentine’s Day: I love you. : ) Obviously!

Finally some good news

Every few months I get an x-ray of my lungs. This is done to check on the spots. You see, last summer when the spots were discovered by the CT, I’d also had an x-ray which didn’t show any cancer. The spots were too small to appear on that less precise form of x-ray imagining.

Therefore, I’ve had an x-ray since then with the idea being, if no spots show up than the cancer is stable. Truth be told, I am having a hard time handling these little hurdles in the metastatic way of life, and so I didn’t blog about their coming or their going. There was nothing to say, I was stable – i.e. nothing showed up.

Last week I went for a CT scan. My oncologist, Dr. Canada , has had hopes of adding me to the latest promising phase three study, where I may have (it is randomized) been given that drug in testing Palbociclib, which seems very promising for ‘extending life’ – which is very good and yet not good enough, if you ask me. If there was any change in the scan, I would be eligible.

I didn’t write about this scan last week. I couldn’t. It felt like my world was about to crash. Mixed between normality were cracks of panic. And what is very hard in all of this, is that these scans and checks are now a way of life. One scan or x-ray will always be followed be another in a few/several months. Metastatic breast cancer, unlike stage three and below, has no end of treatment. It’s living scan to scan, and I wonder if anyone can become hardened against this.

But I don’t really want to talk about that today. So I will stop there. Today I’d rather look at the encouraging things.

I had my results yesterday. They were good. We went out in the evening to celebrate with my parents, because even if I do need to go through this every few months – good news is GOOD. It means something is being done right. The cancer tumors were not just stable, but had somewhat shrunk across the board. Shrinking is a good thing.

Lord, I’m doing so much right now. There’s the vitamin C, the Zoladex, the supplements, the emotional work. So it is hard to say what is working. Maybe it’s my body’s immune system? Maybe it was publishing my novel? Maybe it is just everything all combined? All I know is this is good news, and I need to keep on with the routine. News like yesterday’s is my motivation.

So there is the update. I’ve had so much support from everyone visiting Bumpyboobs and beyond with the diagnosis, the book, living well . . . so when there is good news like this, we need to celebrate. Never mind what comes next.

🙂

Happy faces for everyone. Even if mine is still a bit tentative!

By the by, one of my friends is a doctor at the hospital where I had my results. While waiting for Dr Canada to arrive (after the nurse ushered us into a small treatment room), my friend knocked on the door and came in to chat. This was a very good thing. Everyone should have surprise visits from their friends while waiting for potentially life-altering news. It takes the edge off. So a very big THANK YOU for doing that. And I loved your outfit too, by the way. Polka dots are awesome.

P.S. I might be going to something called Sex-a-palooza via some free tickets. So, there could be a post in that!

P.P.S. This song is sooo good! You are invited to dance in your chair while listening to it.

Lean In? Sometimes I’d rather Lean Away.

So, I have an on-again, off-again book club, and one of the books we recently discussed was Lean In by Sheryl Sandberg. She is the woman in that popular TED talk, which exploded into a book/movement to ‘lean in’.

lean in

The book is for women in the workplace. Or rather, it’s for women who want to excel/climb the ranks in the workplace. She is essentially looking at why we don’t have more women leaders, and a LOT of that reason, according to Sandberg’s discussion, is about children/family.

That is to say, women anticipate having children, and so they back away from work. There are other aspects, but this point is one that interests me the most. Essentially, she suggests that even before meeting the loves of their lives, women are already planning their exit strategy for motherhood. And therefore, they are less ambitious in their jobs.

Okay, I can get that. In fact, I’ve seen that actually happen.

Now why am I talking about this today? Because I’m curious about leaning in from the perspective of cancer.

Sandberg argues women should lean in so that if they do have kids, when they return from their mat leave they will be in a good position. Focusing on advancing your career is worth it for the places it will take you, and because when you come back  to work you’ll be at a higher level.So, say instead of babies you have a possibly shorter life span on your mind. Are there similarities here? Should we ‘lean in’ and create a legacy of some kind? Does that kind of stuff even matter? Why bother leaning in if the clock is officially ticking? Is the assumption of illness, change, or even death reason enough to not go for a promotion or try to rise up in a company? Better yet, those diagnosed with stage four cancer – are we more likely to lean away?

Maybe it’s a matter of time. But that’s the one massive question that cannot be answered. It could be a year, it could be twenty years, it could be . . .  well, who the heck knows?

I’ve met one woman who choose to lean away. She was counting down the days till retirement and was diagnosed with stage four breast cancer. Instead of retiring, she went on disability as she slid into depression. Somehow, to her, being on disability rather than being retired seems to equate to missing the golden ring. But then, I reckon the depression contributes to that perspective.  She is emotionally disconnected from joy, and that is really crap.

There are other women – younger ladies in the thick of motherhood, diagnosed with stage four and choosing to stay home. They’d rather spend time with their kids, and who is going to argue against that? That makes all kinds of sense to me. They are leaning into what matters most to them.

And then there is me. To lean in or lean away? This past autumn had me leaning in to get the book done and out. It was a very good decision, and what an experience. Also, I worked during that time too, even right after diagnosis when life was nothing but brick walls. Though to be honest, while we build Zsolt’s business I don’t have a choice whether or not to work. I must work. We need to eat and pay rent 🙂 Retirement isn’t an option. Heck, I’m only 31! There is nothing to retire.

But even if I’m working, should I be leaning in? Should I try to grow my career or be content as it is? Is it fair to my employers if I apply & get accepted for a higher position? What if I get sick again, and their investment comes to nothing? Is it selfish to lean in? Do I even want to lean in?

With my book it is different. I like to lean in because it’s just me. Either I sell or I don’t sell. Either I create or I don’t create. No one else is impacted. But even with writing . . . well, there are these scans every few months . . . there is that constant limbo. Life itself is an emotional stop and go.

There’s a point in here somewhere . Actually, no, there isn’t a point. There is a question: Do you lean in, and what does that even mean to you after being diagnosed (or someone you love being diagnosed) with cancer? And if someone told you time was limited, would your career even remain a focus?

What do you think? Leaning in post-cancer, leaning in at stage four . . .

I lean into what I love, that’s for sure. But as for the other stuff, I don’t know. I found myself not committing and using “I had cancer, so I don’t’ want to waste my time on crap that doesn’t matter” as an explanation for that – whether or not it is a good explanation. Honestly, I’d rather write short stories that make people smile. I’d rather capture someone’s story and help them feel special. I’d rather tweet and talk and doodle and create. I’d rather feel my heart get filled up with a job very well done. And most of all, I’d rather weave stories, even if it’s not catapulting me to the top of an organization, or even a bestseller list, it’s what I prefer to do. Now with the stage four, I feel that way even more.

Though as I said, I still need to pay my bills 🙂 And really, my dreams are much bigger than just paying bills. I want to buy property and travel and live well and realize some huge ideas that must involve success. So, despite stage four, and not knowing what the next scan will bring, I actually do want to lean in. I want to lean in on my terms and with what I love.

So that’s a little from me. Now it’s your turn:

Lean in . . . what does that mean after fighting for your life? I’d love to know.