Making time

This past weekend my parents ran their annual ‘Wake up’ seminar – so that meant they were crazy busy and we didn’t talk on Sunday.  Didn’t talk on Sunday, and it wasn’t till late Monday that we actually met up on Skype.

Somewhere between Sunday morning and Monday night I realize the following: I’m hooked on talking with my parents.

I kept checking skype for that little green bubble to appear beside their names – over and over, compulsively.

It never used to be like this. There was a time that we’d go a week or two between conversations – I was busy, they were busy, no one had time. But then I was diagnosed with breast cancer and that all changed.  We talk every day, either working together on my issues or just chatting. Even though they are in another country I still feel their support. Actually, I depend on it.

Who knows what will happen when the chemo and radiotherapy is over. Chances are we won’t chat every day. I’ll be busy, they’ll be busy, there won’t always be time. But this has been a very good experience. In some ways it brought me closer to my parents, and I’m really thankful for that.

It’s a heavy thing to take care of someone, but it makes a difference. From Zsolt doing the dishes, to friends bringing food, to talking with my parents – it’s all made a difference. I guess I’m hooked on the support, but for now that’s okay. For now I can let myself be supported.

And then, when this is over, I’ll do what I can to show my thanks.

What’s up, doc?

Last Friday, Zsolt and I met with the lead oncologist. We arrived with a list of questions, but before I could even mouth the word  “Christmas”  we had to first cover the basics.

The basics

Doctor: How are you feeling?

Me: Fine.

Doctor: Any mouth sores?

Me: No .

Doctor: How are your fingers and toes?

Me: Good.

Doctor: And your energy?

Me: Still tired.

Doctor: How’s your mood?

Me: Okay.

Doctor: And your bowels?

Me: Fine.

Doctor: What about nausea?

Me: No.

. . . . .

Doctor: Okay, let’s talk about Christmas.

FINALLY! So that ended the basics. Basically, I’m coping with chemo and plugging along. I get tired, I get sore, I get better, I go to work and proceed as normally as possible.

The conversation then shifted to how many doses of paxlitaxol are ‘enough’. Honestly, he gave the same vague answer that all the doctors have given – in that, studies are based on twelve doses, reducing that dose might/could/possibly make a marginal difference in my chances, but he can’t say for certain. It was his opinion, however, that I finish the entire course.

Blah. Okay, fine.

It was also his opinion that finishing chemo in Canada is entirely possible. He would send an email to the hospital in Ottawa, and we’ll see what they say. Nice!

I realize that travelling during chemotherapy will be exhausting. I am aware. But I want to go home, and this is a compromise.  So, if everything works out on the Canadian side of things, I will be able to see my family over the holidays. That means a lot to me.  Zsolt will drive me to the airport, an airline rep will take me through the airport, and then (with thanks a whole lotta air miles) I’ll fly first class home – where I’ll be helped off the plane and delivered to my family. It will be exhausting, but at least I’ll be supported. Plus Air Canada has those pods up in first class, so I’ll be able to lay back and sleep.

Next week we should hear more – hopefully by then the ball will be rolling.

It’s good news that satisfies everyone.  Zsolt is happy, I am happy, and hopefully the journey isn’t too difficult.

Thumbs up for a good meeting! Yay!

Chemotherapy conversations

Well today went smoothly. I’ll tell you this, I’m getting used to the process – and not having a needle makes it all much easier.

Zsolt and I arrived on time and were seated in green chair number four. I think waiting all depends on whether or not you catch them at the right moment. We walked into the treatment room and every chair was full except for one. Lucky me, my chemo had arrived and a chair was available.

A very nice nurse, bless her, who has an extremely nervous disposition, set things up and began the drip. She’s a nice woman, but quite hesitant in her language. There’s no doubt in my mind she knows what she’s doing, but nevertheless she vocalized her every action. “Here is the antihistamine, I’m just getting ready and, umm, putting it in. There it, ahh, goes. So you should soon feel a bit, umm, sleepy.”

The first time meeting her I was overwhelmed; not by her manner exactly, but by the amount of information she was gave. Nurses have to consider many aspects while administering drugs; the checklists in their minds appear endless. Actually it was from her that learnt about the sleepiness. Before I thought it was just the drugs making me ill (well, it sorta is the drug making me ill/dopy)  afterwards I realized it was the antihistamine. Mentally that helped in accepting the process.

I’ve heard that the word ‘like’ gives people time to think while forming sentences. She was probably, like, doing the same thing.

And then my head lay down on the pillow with hopes of sleep. Hmmm . . . Problem with trying to sleep in a chemo ward: chatter!

Take a room full of women getting chemotherapy and you have chatter. Someone may as well roll in some tea and biscuits to make a proper tea party. Most people are hit by the dopy drug; there’s a period where ladies calmly tilt back their heads with closed eyes – but it never lasts.

Drug wears off, eyes pop open, mouth starts moving.

Today these two women were discussing the side effects of paxlitaxol, which is the same therapy I’m on currently. This one poor woman is losing her nails. First came a brittleness, then nail loss.

Oh my goodness. Here is my problem, unfortunately we are all tied by this common experience and it’s ultimately our first point of conversation. “How’s the chemo, Fran?” “Oh lovely, Sarah – my diarrhea has slowed and that rash went away.” (Okay, no one discusses their diarrhea, but your likely reaction is similar to how I feel about missing nails)

So I slept on the pillow, but also, and quite uncontrollably, eavesdropped on conversations. At one point I had plugs shoved into my ears and hands over my toque but I could still hear the ladies lunching.

Another, potentially more serious bit about treatment room: illness.

It’s that time of the year when everyone is sick. During the week I am either a social hermit or an overly paranoid germaphobe. Any hard cough and my office door is closing. If someone is sick our plans are cancelled. Essentially, I’m being proactive.  It’s only for two more months and afterwards I’ll make up for my lack of social life. But in the chemo room there’s no choice with who you sit beside. Today there was a lady with a fierce cough. She picked it up from her husband (again, I was totally eavesdropping) and hasn’t been able to shake it off.  Anyhow, at this point in my listening I turn away and bury my head into the pillow. Stay away cough!

It’s really interesting in the room. Everyone wants to share their experience –  except Zsolt who reads his book while I’m resting; he purposely avoids eye contact with the other people so he can get on with his novel.

But no wonder they chatter. We’re making the best of our situation, and part of that is through conversation. New families come and sit in worried circles, and of course they’re curious. Other people are alone and talking helps establish community.  While I hardly talk with the ladies (because I’m sleeping, and I must look crazy to them with my oranges and pyjama outfit) the idea of talking is normal in a room filled with women. However, I still don’t want to hear about the nasty side effects, or pick up anyone’s bug.

Hmm, just realized I haven’t mentioned my meeting with the doctor. Okay, will do tomorrow. It was a good meeting, but the result won’t be confirmed till I hear from Canada.

It was a busy chemo today – every chair was filled and (almost) every mouth waggled. Now that we’re home (now I’ve finally napped) it’s far more peaceful. Good to be home, as always – and yes, I’m doing well. 🙂

Shout out to my parents and the group at Ultimate Wake Up! Have fun this weekend, it’s a great expereince.