Screening and Screaming (i.e. frusteration)

Today was a heavier day, and not just because of this heat. Every six months, now moving forward to every year, it’s scan time. This morning I had a mammogram, and I was meant to also have an ultrasound.

Anyhow. We go to the hospital. They squish my breast till I’m standing at the machine (as the nurse move it ever so much tighter, and tighter, and tighter) making rude faces at the wall. But apart from the ridiculous compression of flesh, it goes smoothly.

It should be said that I’m not crazy for mammograms mainly because I’m only thrity (in about 2 weeks), and to receive this sort of scan every year, with all that radiation, really annoys me. I was hoping very much that ultrasounds would be an alternative to the mammogram.

Except after I get the mam done, the radiologist tells me he doesn’t want to do the ultrasound. He thoroughly believes that ultra sound screening produces too many false positives, and he’d have to do a biopsy, and I’d be left on ‘stand by’ (monitored) for six months at a time for years to come.

“But if you really want to do it, we can do it.”

Not. He didn’t really mean that. You should have seen his face when I said, “Well why don’t we just do it?” It was a ,”not a good idea” kinda face. And maybe he’s right?

I became an emotional puddle. (Darn tootin’ emotions! They make it impossible for me to express any words except for, “sorry,” which I shouldn’t even be in that situation.) Zsolt started asking questions about lymph nodes and such, and the doctor was answering his questions. So a mammogram, of course, is a reasonable way to screen . . . not perfect, but I suppose less false positives than an ultrasoun. Fine.

But I don’t want to be shot with radiation for forty some years in an area that I already know is sensitive to cancer. I just don’t want to do it – even this incidence was a twist of the arm following my oncologists request to get “at least one mammogram.”

Anyhow. The radiologist said that MRIs would really be the best option, if I have an overall lifetime risk of breast cancer that is greater than 25%. (i.e. we can’t justify spending the money otherwise.) Fuck. You know what the oncologist in England told me about my more immediate odds (as I made the decision to do chemotherapy), he said I had about 50% chance of not having reoccurrence if I had the treatment.  Of course, that number changes over time . . . but right now, I’m really pissed about the 25% lifetime crap when I had breast cancer in my body and lymph nodes only two damn years ago. And I know we all face this screening abyss, and I’m not entirely sure if I have a right to be so annoyed, but I am. So there.

Right. Bright side of things: I learned a lesson today. My options as a young woman aren’t fabulous in terms of breast cancer screening. I need to become more proactive in choosing my screening, even I need to pay for it myself.

Oh Geez – even brighter side! I didn’t get my results, but the radiologist looked at my mammogram and didn’t order any additional tests, which I take as an awesome sign. Next day or two I’ll call the doctor for the official reading of the correspondence between specialists (results). It’s not really stressing me out, because if he’d seen a lump, I’m sure the ultrasound (to a specific area) would have been done. I suppose it was just such a frustrating feeling, being told I didn’t have the power to choose my screening, that really left me in such a lurch today.

That being said, there has to be a better way. Mammograms for decade upon decade? There just has to be a better way.

(And I’m not going back to ask again for an ultrasound. I do believe that the mammogram is enough, but that’s not the point. The point is, I don’t think it’s the healthiest option for a woman at my age in terms of long-term health. Maybe I’m wrong, but going forward I’d really love to explore other options, whatever those may be.)

Happy Father’s Day!

Today is father’s day, which mean we’ve spent the entire Sunday eating great food. First there was the truck stop by Arnprior, then we had a BBQ, and then there was a beautiful pavlova. So today’s post is going to be a short one. Really, a million things are happening right now here in the world of Bumpyboobs (i.e. my life) but I have a gag order placed on several of them. You’ll hear more about that later.

In the meanwhile, in honour of father’s day, here’s a list of some top-ten dad moments from my dad, Tony Bony. I am sure there are more, but at the moment, these spring to mind.

  • Dad pulling a giant fish from the water – cursing like a sailor, and smiling like a fool.
  • Dad making me sweet potato French fries after my chemotherapy, when I was so hungry and emotional, it was more than many men could tolerate.
  • Stories after dinner, when he rolls back time and entertains us with something hilarious that happened in his childhood. Our narrative nature must come from his side of the family.
  • Dad giving a speech on the day Zsolt and I were married, basically saying how proud he was, and holding back the tears.
  • Dad as a hippy, which I’ve only witnessed through old photographs.
  • Dad picking me up at 3 am in the middle of nowhere, after I had decided to go for a walk (let’s not worry as to why I was in the middle of nowhere at 3 am.) and not giving me shit until the next morning.
  • Dad coming home from work when I was a little girl sick with a cold and saying, “It’s no fun being sick, eh kid?”
  • Dad pushing me to go out to Jasper, Alberta for the summer. It was a completely amazing experience.
  • Dad walking out of mass on Christmas, leading the entire line of people who’d just received communion, and then breaking down laughing when we realize this wasn’t the right way to go.
  • Dad talking to me every other day during the chemotherapy via skype – taking my mind off all the crap with a little light conversation, and some funny stories to pass the time.

Even though he can sometimes drive me crazy, he’s been a great father. I guess we all drive each other crazy occasionally . . . what really matters, I reckon, is the polar moments – whether it’s shit hitting the fan, or all the good stuff happening at once, what really  matters is that for those highs and lows, we support one another. It’s something to be counted on.

So happy father’s day. I hope your dad is as awesome as mine. Please do share your best dad moments if you have some. 🙂

See you later,

Catherine

P.S.

We bought an inflatable, two person KAYAK!!! More later. Let’s just say, I decided to finally realize that long-awaited chemo dream of paddling on the water.

 

My “mention it” Post

I’m in a Friday state of mind, which essentially translates into : can’t bring myself to do paid work. But sometimes I reckon that’s okay, because it leaves time for the other things . . . like writing my story (which I’m doing, by the way – 2000 words and running hot!), and participating in the Goins Writing Challenge.

Well, I don’t often mention my Catherine Brunelle writing blog here on Bumpyboobs, but today’s challenge in the Goins thing is to take a risk. So I’m taking a semi-risk by posting some fresh & childish writing on my CB page, and only mentioning it on my Bumpyboobs. However, I will include a link.

If you’re so inclined, you are welcome to read. It’s nothing, really, but a bit of fun. This is not literature to change the world, though it does change my mood.

Discreet Link to Writing!

Have an awesome Friday – may it involve Hawaiian shirts, flip flops and white sand beaches . . . or just a bit of relaxation in general.

P.S. The house is full of mystery today. Where have all our sunglasses gone? How could they all be missing? Maybe it’s the chipmunks again . . . yes, let’s blame it on the chipmunks.