Back to Bed

So now it’s Sunday, and as predicted I am in bed resting. There has been some glorious napping today, as reward for all that ridiculous advocating yesterday and Friday evening.

As it turns out, my eye is fine. There is more to do, but at least my eye is fine. (vision not so much). My MRI has been hurried up, as I think it should have always been, so that is a win too. And the nose bleed has calmed down. Next week I visit with my oncologist, and we start to get the treatment going.

Time to take care of this cancer bull shit and reclaim my body.

In the meanwhile, I went to Winterlude today with some excellent people – being my two brothers and their partners. We walked/skated the canal, sipped hot drinks, then went over to the ice sculptures. It was freaking ZERO degrees in the city, which is bizarrely warm. So, by the fate of a few texts send by my bros, we caught the beautiful ice sculptures before they began to melt away.

Winterlude

And now I’m home in bed and have been napping like crazy. NAP-attacked. My brain needed it. This evening I think we’ll order some Butter chicken and onion bahji from Havali’s because it’s yummy and my new form of comfort food. Then I’ll go to sleep, and start a fresh page on life tomorrow.

The eye continues to bug me – my left has some very hazy vision issues so it’s truly odd to look at things up close, particularly books or computer screens. But at least I know that as we move forward and treat the issue this can be, in time, resolved.

Not such an easy road ahead, but finally we’re starting in the right direction. There were a few moments this weekend when I remembered my need to advocate even though I truly hate it, and so I kept asking questions – but even more importantly, kept going back I until I had the answers I needed.

No wonder I’m napping all day today – minus the Winterlude good times.

And that is all. Everything is okay. And now I’m going to have some hot chocolate, and then SLEEP MORE.

 

Advertisements

Limbo Land

I have that limbo song in my head just thinking about this post. Every limbo boy and girl, all around the limbo world, gonna do the limbo rock all around the limbo clock! You can thank Chubby Checkers for those awesome lyrics.

We have moved out of our Vanier apartment. Good bye massive kitchen, good bye clouds of smoke and screaming neighbours. Good bye Snack Shack, good bye walking to Bridgehead, Good bye lovely neighbourhood! While I will miss the neighbourhood – we really came to love it (with spring here, folks are beginning to venture outside again. It’s gossip on the street all spring & summer long!).

Dagmar Goodbye

We are out.

I did like it there to be honest. It was our home, and it was HUGE.

Anyhow, limbo land. I called DR Canada about whether I’m able to get onto this big important study, and have not heard back. Not really surprised. We have an appointment with him on April 20th to find out more. So, I’m okay not hearing back. I keep waiting to buy that ticket to Hungary, but may as well embrace the stillness for the brief moment that it lasts.

The move this past Sunday went very well. There were some moments of panic. Firstly, we couldn’t get the queen box spring mattress into the truck bed. So, my little brother strapped it on top of the truck and we drove at 20 km/hour to my friend’s house in the neighbourhood where we are storing our furniture for the summer. But then, the darn tootin’ box spring wouldn’t fit into their basement! My little bro gave me a jolt of panic when he said: Do you have any backup storage? Can you arrange that right now?

To which I replied: Augh!

That was pretty much his prediction over and over throughout the entire day: You will need more storage.

Actually, we did need more storage. But thankfully my friend’s lovely neighbour popped up outta nowhere (okay, from next door) and offered to house our mattresses IN HER BASEMENT! This is what I mean about Vanier having some truly lovely people. We don’t even know this lady, and she lent us space in her home. I guess the world in general is full of lovely people.

With my Dad’s truck not getting the job done fast enough, (and my entire family present, slowly losing their patience with job of moving boxes one vehicle at a time) little bro had another idea: he’d rent us a MOVING vehicle/truck! While we all thought he was away picking up some tools, he was actually out renting a moving truck. Smart guy. Once he arrived the boxes were loaded in, and off they went. It was a good idea, I’ll admit it. I’m also quite glad I didn’t  need to arrange it.

Days prior to the big move, we were dealing with the big PACK. Honestly it was driving Zsolt and I crazy sorting through so many things, packing boxes, sorting closets, cleaning spaces, sorting charity . . . packing just takes forever and it turns everything upside down. We were losing our minds in the mess, and our apartment turned into a strange maze where you navigated between stacks of cardboard boxes.

Now we are in my parents basement again, soaking up the calm spring rays of sunshine, and clean smoke-free air. I feel as if we’ve come full circle from the time we first arrive in Canada. Except, you know, it’s not at all the same, and we won’t be here for long. I’m still itching to buy that ticket to Hungary. I suppose I’ll just have to wait till April 20th to learn what type of schedule will be happening. Fingers crossed for the study. I like that option & I want that option.

And that is all. Excuse me while I go listen, again, to that limbo land song.

Penny Palooza 2014 in Ottawa, Aug. 23rd

Penny Palooza2Last year I “E-Met” Penny when she and I connected on Twitter. We live in the same town, and Penny was dealing with the treatment of breast cancer. Since then, she’s been a great supporter of my novel (even walking nearly an hour to the book launch!) and a supporter of the city where I live. As we all are, she’s way more than the trauma of breast cancer – and so she’s pulling together her many skills to help raise funds for the Ottawa Hospital Breast Health Centre.

So, how is she doing that? Wiiiitttthhhh

PENNY PALOOZA!

Basically, it’s a music festival in a park in the summer. So, that’s perfection. It is in Ottawa on Saturday August 23rd (Why is the best stuff on a Saturday, when I’m working? Let’s start having all the cool stuff happen on Tuesdays, eh?) from 4-9PM. 🙂 Admission is a suggested donation of 10$/person, or 20$ for a family of four. If you want to indicate you’ll be going, here’s the facebook event page!

She’s got a lot of heart, and a lot of drive to be bringing this out another year. For that, I tip my hat to you, Penny.

Penny Palooza1