It’s Cancerous: A Love Story

I wrote this ‘game’ in the summer, and intended it for #metastatic breast cancer day (i.e. stage 4) during this month for #breastcancer awareness. It’s still in its rough form, but I’ll share it because that was why I wrote it, and believe me it wasn’t so easy to write. This isn’t everyone’s experience, and to be honest I have purposefully given it a vague ending – to be interpreted as you like. But it springs from very real frustrations. The options are not easy, and not enough.

So, play if you dare.

Click here: It’s Cancerous: A Love Story

 

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Finally some good news

Every few months I get an x-ray of my lungs. This is done to check on the spots. You see, last summer when the spots were discovered by the CT, I’d also had an x-ray which didn’t show any cancer. The spots were too small to appear on that less precise form of x-ray imagining.

Therefore, I’ve had an x-ray since then with the idea being, if no spots show up than the cancer is stable. Truth be told, I am having a hard time handling these little hurdles in the metastatic way of life, and so I didn’t blog about their coming or their going. There was nothing to say, I was stable – i.e. nothing showed up.

Last week I went for a CT scan. My oncologist, Dr. Canada , has had hopes of adding me to the latest promising phase three study, where I may have (it is randomized) been given that drug in testing Palbociclib, which seems very promising for ‘extending life’ – which is very good and yet not good enough, if you ask me. If there was any change in the scan, I would be eligible.

I didn’t write about this scan last week. I couldn’t. It felt like my world was about to crash. Mixed between normality were cracks of panic. And what is very hard in all of this, is that these scans and checks are now a way of life. One scan or x-ray will always be followed be another in a few/several months. Metastatic breast cancer, unlike stage three and below, has no end of treatment. It’s living scan to scan, and I wonder if anyone can become hardened against this.

But I don’t really want to talk about that today. So I will stop there. Today I’d rather look at the encouraging things.

I had my results yesterday. They were good. We went out in the evening to celebrate with my parents, because even if I do need to go through this every few months – good news is GOOD. It means something is being done right. The cancer tumors were not just stable, but had somewhat shrunk across the board. Shrinking is a good thing.

Lord, I’m doing so much right now. There’s the vitamin C, the Zoladex, the supplements, the emotional work. So it is hard to say what is working. Maybe it’s my body’s immune system? Maybe it was publishing my novel? Maybe it is just everything all combined? All I know is this is good news, and I need to keep on with the routine. News like yesterday’s is my motivation.

So there is the update. I’ve had so much support from everyone visiting Bumpyboobs and beyond with the diagnosis, the book, living well . . . so when there is good news like this, we need to celebrate. Never mind what comes next.

🙂

Happy faces for everyone. Even if mine is still a bit tentative!

By the by, one of my friends is a doctor at the hospital where I had my results. While waiting for Dr Canada to arrive (after the nurse ushered us into a small treatment room), my friend knocked on the door and came in to chat. This was a very good thing. Everyone should have surprise visits from their friends while waiting for potentially life-altering news. It takes the edge off. So a very big THANK YOU for doing that. And I loved your outfit too, by the way. Polka dots are awesome.

P.S. I might be going to something called Sex-a-palooza via some free tickets. So, there could be a post in that!

P.P.S. This song is sooo good! You are invited to dance in your chair while listening to it.

Am I not paying enough attention to cancer?

Okay, so yesterday I spent my entire Friday in front of the computer webcam making a video. It was a heck of a lot of work for something that is totally basic – but there was the editing, the lack of a script (my dad taught me in elementary school to never public speak using a written script . . . so instead we’d write points and I’d talk around those ideas . . . and then in high school during my debating club days, it was the same situation. So yesterday, I figured I’d ‘go natural’ and just talk. Four hours later . . .), and then of course the editing of my rambles. But it was SO worth it. The final result is open and honest, even if not fancy. I reckon open and honest come first when asking people to fund your project.

Okay, so the reality is that in preparing for this kickstarter campaign, even though I’m a wee bit overwhelmed with its growing requirement of commitments and work, it’s freaking FUN.

I’m having fun.

And it was realizing that last week that scared the crap outta me.

During an interview with a fabulous local blog, Apt613, on the kickstarter book project, I was asked about how I could jump into such a big project with the news I’d just received? You know, where do I find the energy? And my only answer for that was that this is my energy because it’s my joy. I’m also kinda worried about what happens next once this goal is realized (with your help!). Where does that energy go?

And then the other day a neighbour said to my mom that she’d “heard your daughter isn’t doing well.” Which is fine, and so understandable. Except that I am doing well. For someone in my situation, I’m able to walk, there’s been no chemo as of yet, I have my hair, my energy is good, I can breathe . . . I am doing very well.

Screenshot!

Screenshot!

But having had these questions, they must have lingered in the back of my mind or something, because the other day I had a big pause moment where a feeling of panic suddenly overcame me:

  • Am I in denial?
  • Am I not thinking about the cancer often enough?
  • Is it going to blindside me again, because I’m not paying enough attention?
  • How often should this be on my mind, should I be scared? Like, right now and today, should I have fear?

Because when I work on my book publishing goal, those feelings . . . that fear . . . it kinda just turns off. Is it a good thing? Or am I being naive?

Last week I had a coaching session with this lovely lady named Camille Boivin. She’s from Ottawa and I work with her for her company Sister Leadership. Anyhow, Cam is full of generosity and a desire to help people connect with their emotions and ambitions. And when the cancer came back, we started working together not as client and writer, but as coach and person-who-needs-some-emotional-work-done. (That’s me.)

So last week in our session I was talking about this anger I’d been feeling. And somehow that discussion of anger turned toward a discussion of sadness. Because along with that anger, I was feeling deeply sad (and still do sometimes, like when I realized last week I wasn’t feeling shitty enough). So we honed in on that sadness. Cam asked me to look back over my life when I’ve felt similar feelings of sadness.

*In this case of metastatic cancer, I’d say the sadness isn’t just about the disease, but more so about potentially leaving my husband behind and hurting my family and friends. The idea is completely crushing.

So I began thinking back in time when I’d felt feelings of loss and sadness. School graduations. Ends of summers working abroad. Moving to a new country. Saying goodbye at airport. Leaving a beloved workplace. Losing my golden retriever . . .

And then Cam asked me this: “If you could go back with what you know now, what would you tell yourself in those moments of sadness?”

And I said to her, “that even though it hurt, good things were coming . . . and love doesn’t stop just because you are separated. The love keeps on going.”

Because from school graduations came new schools, clubs and friends (and I just attended the wedding of my first friend ever – we may not be together always, but the love stays); end of the summer working abroad brought me back home where I found a bookstore job and made more friends there (though I’ll always love the Jasper Kids from 2002);  In moving to a new country I left my family and best friend, but learned oh so much about being independent and made such incredible friendships with people who I still carry in my heart even after returning to Canada; saying goodbye at the airport always means I get to say hello to someone on the other end; leaving my work gave time and space for me to become a writer; and losing my dog – well, that still hurts but the love doesn’t fade. Not one bit.

So I guess if I could go back to those moments when I felt that sadness, I would just tell myself that I’m not leaving the love and by moving forward more good things are going to happen.

Since that conversation I’ve felt a lot less angry, a lot less sad. I’ve been to doctor appointments, blood draws, chemo wards, searching for clinical studies, urine samples, meds from the pharmacy, acupuncture . . . but I’m not grieving the Catherine of four months ago who was almost certain she was cancer-free.

Today I am here, and I’d rather run forward toward whatever good can be created. This kickstarter is part of that. Being proactive in my health is part of that. Not being sad has been a result of those reflections.

Is it normal? Will it stay forever? Is it denial? Is it really because I haven’t met with Dr. Canada? I just don’t know.

How often should I think of the cancer, and will it do me any good? Again, I just don’t know.

It’s so strange to wonder if I’m not fearful enough. I also realize I’m new to metastatic cancer, and therefore incredibly naive to its realities. Is there a right way to cope? I would actually really appreciate hearing other people’s experiences with this fear vs. life thing – is there any use in holding fear close? I’ve been happier this past week than I’ve been for a while, and that is quite precious in these times.

Anyhow. That’s all I have to say about that.  Now, back to work!

~Catherine

P.S.

To not overwhelm you with blog posts, I’m going to slip in the second excerpt from The Adventures of Claire Never-Ending. Meet Elizabeth (Amelia’s mother) and read her story here! If you want to sign up for an email notification when the project launches, you can do so here.

liz